The seven winners of the 2018 IMPACT Innovation awards:
Breastcancer.org, CancerCare, Can Do MS, Facing Our Risk of Cancer Empowered (FORCE), Foundation for Sarcoidosis Research, Lymphoma Research Foundation and SHARE: Self-Help for Women with Breast or Ovarian Cancer
Breastcancer.org’s Breast Cancer Checklist Kits: Digital and Analog Tools to Improve Patient Care will create a series of interactive digital and analog checklist kits that prepare each patient for their unique treatment milestones. developed from their expert-vetted content and 18 years of conversations among 200,000 people on their discussion boards. Their kits will help patients focus on the concrete actions they can take to feel confident communicating with their doctors and making decisions throughout their journey.
CAN DO Multiple Sclerosis’ CAN DO Program II: Continuing the Connection plans to increase resilience skills and personal motivation for PwMS and care partners to improve health through behavior change. The curriculum will include workshops, one-on-one consultations, and support groups.
CancerCare’s Disaster Response Program will establish a permanent program that will provide services for cancer patients following a disaster in the United States and its territories. The program will provide free transportation directly to treatment facilities; assistance with related expenses; referrals to food, shelter, and clothing services via established partnerships in impacted areas as well as counseling.
Facing Our Risk of Cancer Empowered (FORCE)’s XRAY: eXamining the Relevance of Articles for You will adapt their XRAYS program—focused on breast cancer in young women—into a program for all people with, or at high risk for breast, ovarian, pancreatic, and prostate cancers. The program helps young women understand breast cancer headlines and new research by providing plain language summaries, visual scores indicating the research’s clinical relevance, and visual star-ratings scoring the accuracy of the media coverage.
The Foundation for Sarcoidosis Research’s Patient Registry Outreach Program will, along with collaborator, MPN Research Foundation, create a Patient Registry Outreach Program (PROP) to build registry recruitment in under-served groups, addressing cultural, socioeconomic, and geographic barriers common to all spaces. PROP includes a Patient Registry Engagement Toolbox as well as facilitation of strategies to address barriers in recruitment for registries within FSR and MPN, and can easily be replicated in others.
Lymphoma Research Foundation’s Adolescent and Young Adult Initiative (AYAI) will further expand its digital resources, mobile app, social media outreach, and AYA patient toolkit with the goal of bringing a multi-disciplinary, multi-modal program directly focused on the AYA population. The hope is to be able to provide easy access to such critical educational materials and support resources to student health centers on college and university campuses, and medical institutions nationwide to empower AYAs to take control of their health outcomes.
SHARE’s Ambassador Outreach Program: National Expansion Pilot plans to educate and train African-American and Latina women who are survivors of breast or ovarian cancers and their family members to serve as advocates in their own communities.