Celgene Cooperation With European Patient Organizations

Support for Pan-European patient organizations and International Patient Organizations with offices or activities in Europe:

EMSP

• Consultation fees for input to Celgene clinical trial design
  € 630.00
• Support for the EMSP Spring Conference 2018
  € 10,166.10

EuropaColon

• Support for 2018 pancreatic cancer activities
  € 12,500.00

European Brain Council

• 12-month EBC membership fees
  € 20,000.00
• Support for MS Policy Narrative Project
  € 40,000.00

European Cancer Patients Coalition

• Consultation fees for review of Celgene clinical trial lay summaries
  € 371.70
• Support for clinical trials seminar and pancreatic cancer activities
  € 25,000.00

European Federation of Crohn’s and Ulcerative Colitis Associations – EFCCA

• 2018 annual corporate membership
  € 8,474.58
• Contracted service for Clinical Trials Knowledge Sharing – publication of a Celgene trial on the EFCCA website
  € 10,000.00

European Patients Forum (EPF)

• Support for EPF’s 2018 Workplan
  € 15,000.00

EURORDIS (European Organization for Rare Diseases)

• ERTC Membership Fees and support for international initiatives
  € 90,000.00

International Alliance of Dermatology Patient Organizations

• Participation in 3 sessions at the Celgene Learning Lab at EADV 2018
  € 7,379.29

Lymphoma Coalition

• Support for the Lymphoma Global Patient Survey
  € 8,474.58
• Support for the Lymphoma Global Summit
  € 29,661.02

Myeloma Patients Europe

• Speaking engagement at an internal Celgene meeting, including honoraria, travel and accommodation
  € 1,116.03
• Support for the Pan-Hematology Community Advisory Board in June 2018
  € 15,000.00
• Support for MPE’s 2018 activities
  € 100,000.00

Patient Focused Medicine Development / The Synergist

• Support for the Reasonable Agreements Between Patient Advocacy and the Pharmaceutical Industry initiative (RAPP)
  € 2,000.00

IFPA International Federation of Psoriasis Associations

• Travel and accommodation to present at a World Psoriasis Day event at Celgene Boudry
  € 1,155.62
• Participation in 3 sessions at the Celgene Learning Lab at EADV 2018 for IFPA and the Global Psoriasis Coalition
  € 7,379.29
• IFPA’s Partnership Program and Global Psoriasis Coalition membership fees
  € 95,000.00

International Myeloma Foundation

• Support for GMAN – Global Coalition that empowers patients through education and advocacy, raises the capabilities of PAGs around the globe, advocates for access to treatments and improves outcomes through education.
  € 127,118.64
• Support for European Patient and Family Seminars, IMF Publications and translations, Myeloma Minute European Versions
  € 233,050.85

Multiple Sclerosis International Federation

• Support for Atlas of MS project
  € 6,355.93
• Support for World MS Day
  € 12,711.86
• Support for Access to Effective Treatment project
  € 12,711.86
• Support for informed decision making project
  € 12,711.86

Thalassaemia International Federation

• Support for e-educational platform for healthcare professionals
  € 16,949.15
• Support for 2018 educational activities, including publications for patients, ThalPal Mobile App, e-platform for patients, TIF Collaborating Centres Network
  € 57,627.12

EUROPSO

• Support for the 2018 EUROPSO Annual Meeting and 30th Anniversary Awards Dinner
  € 7,500.00

Myelom- und Lymphomhilfe Österreich

• Consultation Fees for Celgene Packaging Advisory Board
  € 130.00

ÖMSG gemeinnützige Privatstiftung

• Support for patient education projects and MS awareness
  € 5,000.00

Pro Rare Austria

• Support for the organization of Austrian conference for rare diseases and European Conference on Rare Diseases & Orphan Products; creation of a national action plan for rare diseases; relaunch of website
  € 3,000.00

PsO Austria – Verein und Selbsthilfegruppe der PsoriatikerInnen Österreichs

• Support for the organization of PsO information day
  € 400.00

SHG Pankreaskarzinom

• Support for website maintenance and printing costs for flyer
  € 1,000.00

CMP Vlaanderen

• Grant for the daily activities of the organization
  € 4,000.00
• Grant for patient survey in collaboration with MyMu
  € 8,077.00

European Patient’s Academy (EUPATI) Belgium

• Support for the organization of Patiëntenforum 2018
  € 1,500.00

GIPSO asbl

• Grant for the daily activities of the organization
  € 3,250.00

MyMu

• Grant for the daily activities of the organization
  € 4,000.00
• Grant for patient survey in collaboration with CMP Vlaanderen
  € 8,077.00

Psoriasis Liga Vlaanderen

• Grant for projects and activities in 2018
  € 3,000.00

Psoriasis-Contact

• Support for the daily activities of the organization
  € 3,000.00

Reumanet vzw Belgium

• Grant for the support of activities in 2018 and creation of a patient brochure
  € 5,000.00

Mijelom u BIH

• Support for the meeting “You are not alone” for MM and MDS patients
  € 3,000.00

Savez za Rijetke bolesti Republike Srpske

• Support for the organization of Rare Disease Day 2018
  € 1,000.00

Croatian Psoriasis Association

• Support for a public campaign for World Psoriasis Day
  € 1,000.00
• Support for reprinting of booklets, update of webpage and patient’s awareness meeting
  € 4,000.00

Croatian Alliance for rare diseases

• Support for Rare Disease Day 2018 and The 5th National Conference on Rare Diseases
  € 4,500.00

Croatian society leukemia and lymphoma

• Support for 2018 projects: Health through knowledge, I have only one wish, Blood cancer exists and multiple hematology World Awareness Days
  € 2,645.76

Myeloma CRO

• Support for 2018 meetings, including: Lecture and discussion between patients and doctors on Multiple Myeloma and Myeloma South East Europe Network AB
  € 2,645.76
• Support for travel expenses to attend the CEE Health Innovation Forum in Warsaw, Poland
  € 194.35
• Support for a delegate to attend the CEE Health Innovation Forum in Warsaw, Poland
  € 930.00

Mnohočetný myelom klub pacientů

• Support for the project “Should Myeloma be Painful” and tailored educational activities for myeloma patients
  € 2,528.39
• Support of Multiple Myeloma patient group activities in 2018
  € 11,669.49

OnkoMajak

• Support for the campaign “Pancreatic cancer in the Czech republic”.
  € 23,436.23

Spolek Diagnóza leukemie, z.s

• Support of MDS patient group activities in 2018
  € 18,671.19

Spolek psoriatiků a atopických ekzematiků (SPAE)

• Attendance at an educational activity held in Warsaw
  € 1,478.68
• Participation at the Celgene Learning Lab (gift in kind)
  € 2,459.76
• Support to attendance at the EADV 2018 congress in Paris
  € 3,660.45
• Support for 3 delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
  € 2,670.00

Dansk Myelomatose forening

• Support for 2018 network meetings
  € 2,012.29

FAIM

• 2018 membership fees
  € 200.00
• Support for a conference on autoimmune diseases
  € 3,354.00

Lungekræft

• 2018 membership fee
  € 533.00

LyLe

• Support for patient and family seminar
  € 16,000.00

Psoriasisforeningen DK

• 2018 Membership fee
  € 253.00
• Support for the PSOMentor Application
  € 2,000.00

Scleroseforeningen

• Sponsorship of Cykelnerven Disease awareness
  € 33.333.00

Psoriasisliitto

• Support for World Psoriasis Day
  € 2,200.00

Suomen Syöpäpotilaat Finish Cancer Patients

• Consultation Fees for Celgene Packaging Advisory Board
  € 130.00
• Support for EHA Sharing best practice meeting among Nordic PAG
  € 280.95
• Support for the project: Beating Cancer with Life Science
  € 300.00
• Support for the EUPATI network
  € 3,700.00

AF3M

• Contracted service in the Humagine project (project to improve experience of chronic disease patients), including fees, transportation, and meals
  € 2,256
• Contracted service for consulting in a video with patient testimonials including honoraria of AF3M and related transportation
  € 368.00
• Contracted service for consulting RC3M board: project to develop a multiple myeloma competency repository
  € 640.00
• Contracted speaking engagement for annual “Ateliers Celgene” meeting with French HCPs including honoraria, transportation and meals
  € 932.00
• Contracted service for the review of a draft Informed Consent Form template for clinical studies
  € 1,120.00
• Supply of 2000 information leaflets for the National Multiple Myeloma Day
  € 2,620.00
• Grant to support National Multiple Myeloma Day in 25 French towns
  € 60,000.00

Association de Soutien et d’Information à la Leucémie Lymphoïde Chronique et la maladie de Waldenström (SILLC)

• Contracted service for consulting in a video of patients testimonials including SILLC honoraria and patient’s transportation
  € 455.00

Association Française du Vitiligo

• Participation at the Celgene Learning Lab at EADV 2018
  € 2,459.76

Association la Compagnie des Aidants

• Grant to support the development of a self-training platform
  € 50,000.00

France Lymphome Espoir

• Contracted service for consulting in a video of patients testimonials including FLE honoraria and transportation of patient
  € 261.00
• Grant to support the meeting “Lymphormons-nous” in the town of Nantes
  € 5,000.00
• Grant to support World Lymphoma Day in various locations in France
  € 15,000.00
• Consultation Fees for Celgene R&D (CAR T)
  € 480.00

France Psoriasis

• Contracted service in the Humagine project (project to improve experience of chronic disease patients), including fees, transportation, and meals
  € 4,419.00
• Contracted service for consulting in a video with patients testimonials including Fr Pso honoraria and transportation of patient
  € 768.00
• Participation at the Celgene Learning Lab at EADV 2018
  € 2,459.76
• Contracted service for consulting in the “PSOPRO” project, the national survey of the impact of psoriasis on patients lives, including honoraria and transportation
  € 7,697.00
• Grant to support World Psoriasis Day
  € 25,000.00

Lymphoma Coalition

• Consultation fees for review of Celgene clinical trial lay summaries
  € 566.40

TRANS-FORME

• Grant in the context of inter enterprise consortium to support sports-medico events of TransForme
  € 4,500.00
• Grant to support two running event as part of an organ donation awareness campaign “Course du Coeur” (Paris- Bourg St Maurice- les Arcs) 2018 and 2019
  € 35,400.00

Click to view Germany’s 2018 support for patient organizations

EOTHA – Greek Thalassaemia Federation

• Supporter-level sponsorship of National Educational-Informative Conference
  € 10,000.00

ESTHA Greek Thalassemia association

• Support for Educational meeting for patients, focused on liver, kidney and endocrinological complications in Thalassaemia
  € 5,000.00

K.E.FI OF ATHENS – ASSOCIATION OF CANCER PATIENTS

• Impact PANC 2017 Award Program
  € 16,949.15

Az Egészségügyben dolgozókért 2009 Alapítvány

• Support the yearly activities of the Oncohematology Patient Club, including support for travel of patients to events within Hungary
  € 1,567.80

Click to view Ireland’s 2018 support for patient organizations

Click to view Italy’s 2018 support for patient organizations

OHLB “Kraujas”

• Support for the organization of Blood Day
  € 1,300.00
• Support for the organization of Blood Day
  € 1,700.00
• Preparation and publication of myeloma information and booklet and PR activities
  € 3,000.00

National Alliance for Rare Diseases of Macedonia (NARDM) LIFE WITH CHALLENGES Bitola

• Support for the organization of Rare Disease Day 2018 and a patients marathon
  € 2,500.00

Alvleesklier vereniging NL

• Support for Alvleeskliervereniging activities for patients with pancreatic diseases
  € 2,500.00

Huidfonds

• Support for Huidfonds activities for patients with skin diseases
  € 5,000.00

Huidpatiënten Nederland

• Support for a patient information event – Happy met je Huid festival
  € 5,000.00

MS Vereniging

• Support for a patient information event – MS and work
  € 4,558.00

Reumazorg Nederland

• Support for a patient event for patients with rheumatic diseases
  € 1,750.00
• In kind donation of ´Inzichtbaar´ books that were published by Celgene that feature patient stories
  € 6,100.00

Blodkreftforeningen

• Disease awareness through support of BKF membership publication
  € 1,271.19
• Support for national member survey 2018
  € 3,559.32

ALIVIA – Oncological Foundation of Young People

• Support for the educational campaign “Prosto w raka”
  € 14,222.03
• Support for delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
  € 250.00

Carita Foundation – Living with Multiple Myeloma

• Support for the national congress for MM patients
  € 54,517.80
• Support for delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
  € 2,600.00

Hospice Foundation – Fundacja Hospicyjna

• Organization of 3 editions of educational training for nurses and medical carers
  € 11,851.69

National Forum for Rare Diseases ORPHAN

• Support for National Awareness Day on Rare Diseases and nationwide awareness campaign on rare diseases
  € 3,555.51
• Support for the organization of an HTA conference: Rare Diseases and Orphan Drugs – challenges for Poland
  € 12,041.32
• Support for delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
  € 320.00

Ogólnokrajowe Stowarzyszenie Pomocy Chorym na Przewlekłą BIałaczkę Szpikową/National Association for CML Patients Help

• Donation for regional support groups
  € 11,851.69
• Support for delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
  € 1,600.00

Polskie Stowarzyszenie Pomocy Chorym na Szpiczaka/Polish Association for MM Patients Aid

• Support for educational workshops for MM patients in Torun
  € 31,013.52
• Support for the organization of XIII Educational Congress for MM patients
  € 42,666.10
• Support for three projects: Social campaign “Back pain”; Educational campaign to raise the awareness on MM; Social media campaign
  € 52,147.46
• Support for delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
  € 5,000.00

Together in Disease Foundation – Fundacja Razem w Chorobie

• Support for educational forum of PAGs
  € 23,703.39

Unia Stowarzyszen Chorych na Łuszczyce i ŁZS

• Support for delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
  € 320.00

Ursula Jaworska’s Foundation (Fundacja Urszuli Jaworskiej)

• Support for delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
  € 600.00

Foundation Hospice of Saint Christoph (Fundacja Hospicjum Onkologiczne Sw. Krzysztofa)

• Support for delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
  € 250.00

Polish Cancer Patients Coalition (polska Koalicja Pacejntow Onkologicznych)

• Support for delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
  € 600.00

Stowarzyszenie Wsperające Chorych na Chłoniaki – Sowie Oczy

• Support for delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
  € 630.00

Associação Nacional de Esclerose Múltipla

• Support for ANEM 2018 activities
  € 3,000.00

Associação Portuguesa Contra a Leucemia – APCL

• Support for Projecto Casa Porto Seguro
  € 5,000.00

Associação Portuguesa de Leucemias e Linfomas (APLL)

• Support for Sessão Comemorativa do Dia Internacional dos Ensaios Clínicos
  € 15,000.00

Europacolon Portugal – Associação de Luta Contra o Cancro do Intestino

• Support for Comemoração Dia do Cancro Pancreático
  € 10,000.00

Liga Portuguesa Contra o Cancro

• Support for Premio Jornalismo 2017
  € 5,000.00

Liga Portuguesa Contra o Cancro – Nucleo Regional do Centro

• Support for Comemoração quinquagésimo aniversário da LPCC
  € 1,500.00

All-Russian public organization «Ligue patients’ defenders»

• Support for the 8th Russian National Right to Medications Congress
  € 10,084.75

All-Russian public organization of disabled people «Russian Society of Hematology “SODEJSTVIE” (RSH «SODEJSTVIE»)

• Support for 8 regional roundtables
  € 4,322.03

Interregional Charitable Public Organization “Skin and Allergic Diseases”

• Participation in 2 sessions at the Celgene Learning Lab at EADV 2018
  € 4,919.53
• Support for two webinar events for people with psoriasis and/or psoriatic arthritis and a social campaign “Remission is possible” on the Internet and social networks
  € 6,483.05
• Support for activities for patients with PsO and PsA; Three “Schools of psoriasis and psoriatic arthritis” in Russia; and preparing informational printed materials for patients
  € 10,805.08

Inter-regional public organization for patients with hematological diseases Mercy Bridge

• Support for the development of a website, donor initiatives, and patient workshops
  € 27,516.95

National Association of the organizations for patients with rare diseases “Genetics”

• Support for three round tables held in 3 regions (St. Petersburg, Leningrad Region, Moscow Region)
  € 9,364.41
• Support for the Altaian regional conference “Rare diseases yesterday, today and tomorrow” and two regional round tables
  € 9,364.41

RUSSIAN PATIENTS ASSOCIATION

• Support for the Ninth All-Russian Congress of Patients
  € 10,084.75

National Organization for Rare Diseases Serbia

• Support for education about rare diseases project and a regional rare disease Balkan conference
  € 5,000.00
• Support for travel expenses to attend the CEE Health Innovation Forum in Warsaw, Poland
  € 402.59
• Support for a delegate to attend the CEE Health Innovation Forum in Warsaw, Poland
  € 930.00

The Association of Myeloma Patients of Serbia

• Support for a meeting of Myeloma today
  € 1,500.00

NIE Rakovine o.z.

• Support for patient association in printing of the interactive books for inpatients (details enclosed)
  € 5,000.00
• Support for the “Oncology Patient Project”
  € 10,000.00
• Support for communication activities for patients, nurses, HCPs, members meeting – seminar, psycho-social support and advice
  € 15,000.00
• Support for 2 delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
  € 1,800.00

ONKOINFO o.z.

• Support for the creation, maintenance, technical and administrative support of Onkoinfo web portal.
  € 10,000.00

OZ Slovenský pacient

• Support for the publication of 15 dermatology focused articles on the website www.slovenskypacient.sk and print versions
  € 4,000.00

Spoločnosť psoriatikov a atopikov SR

• Support for the project Rise Up Against Psoriasis and related webpage www.vzoprisapsoriaze.sk, and the organization of Hug Day
  € 28,560.00

Združenie pacientov s hematologickými malignitami

• Support for patient education
  € 16,200.00
• Support for a delegate to attend the CEE Health Innovation Forum in Warsaw, Poland
  € 930.00

Association of patients with blood diseases

• Support for a guidelines booklet for MDS patients
  € 3,000.00
• Support for patient social programs in 2018
  € 7,000.00
• Support for 2 delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
  € 1,800.00

Slovenian Association of Lymphoma and Leukaemia Patients

• Support for a holistic rehabilitation program, booklet for patients and the Back to Life awareness campaign
  € 5,500.00
• Support for travel expenses to attend the CEE Health Innovation Forum in Warsaw, Poland
  € 366.85
• Support for a delegate to attend the CEE Health Innovation Forum in Warsaw, Poland
  € 930.00

Click to view Spain’s 2018 support for patient organizations

Blodcancerförbundet

• Consultation Fees for Celgene Packaging Advisory Board
  € 98.33
• Support for Lymfomsatsning event
  € 1,968.65
• Sponsorship of the Swedish MDS & AML Day 2.0
  € 4,001.02
• Sponsorship of Inga fler utredningar
  € 7,926.78

Nätverket mot cancer

• Sponsorship of World Cancer Day
  € 1,314.54

Psoriasisförbundet

• Sponsorship of World Psoriasis Day
  € 3,010.17

Ung med Psoriasis

• Support for “Movies with clothes for young psoriasis patients”
  € 3,539.96

ho/noho – Schweizerische Patientenorganisation für Lymphombetroffene und Angehörige

• Support for disease awareness activities
  € 8,936.82

MKgS – Myelom Kontaktgruppe Schweiz

• Support for Patient Survey & Communications Channels
  € 29,960.59

Rheumaliga Schweiz

• Support for annual activities
  € 8,560.17

Schweizerische Pankreasstiftung

• Support for disease awareness activities
  € 30,816.61

SKS – Stiftung zur Förderung der Knochenmarkstransplantation Schweiz

• Support for patient groups
  € 17,120.34

SPVG

• Support for public disease awareness
  € 31,255.32

SSP – Schweizer Selbsthilfeorganisation Pankreaserkrankungen

• Support for disease awareness activities
  € 6,420.13

Survival Story

• Support for disease awareness activities
  € 7,345.48

Cancer Fighters Association

• Donation to the project: ‘Patient School for Multiple Myeloma Patients’
  € 3,306.36

Leukemia Lymphoma Myeloma Patients and Research & Education Association

• Donation to support association’s meeting titled ‘Multiple Myeloma Diagnosis and Treatment Approaches for Hematologists’
  € 3,306.36
• Donation to support association’s ‘6th Leukemia Lymphoma Myeloma Patients Congress’
  € 6,612.71

Thalassemia Federation

• Support for Thalassaemia meeting
  € 3,306.36

Click to view United Kingdom’s 2018 support for patient organizations