Celgene Cooperation With European Patient Organizations

Across Europe Celgene collaborates with patient organizations through support and collaboration on initiatives that make a positive impact on our patients, our communities and our world, today and for years to come. We are committed to improving the lives of patients and focus our support in areas where we can make the greatest impact.

Celgene Interaction With European Patient Organizations

According to European regulations Celgene requires European-based patient organizations to subscribe to communications on behalf of Celgene and its third parties. To be compliant with these regulations, Celgene has developed a registry of patient organizations based in Europe where they can provide consent for Celgene to keep in touch, and in what capacity.

Celgene Support for European Patient Organization

Across Europe Celgene provides support to organizations and initiatives that make a positive impact on our patients, our communities and our world, today and for years to come. We are committed to improving the lives of patients and focus our support in areas where we can make the greatest impact.

Support for patient organizations in Europe is the responsibility of the local Celgene office in the country in which the patient organization is based and is dependent on local laws and regulations. If you are a European based patient organization and wish to apply for support please contact your local Celgene office for more information. Patient organizations who provide services in more than one European country can apply for support to the Celgene EMEA regional office.

Publication of Data on Patient Advocacy Group Support in 2021 (PDF)

The lists below show all the support given by Celgene for European patient organizations or initiatives in Europe in 2020.

Belgium (2020)

European Cancer Patient Coalition

Fees for professional services
€ 720

Cyprus (2020)

Thalassemia International Federation

Fees for professional services
€ 720.00
Fees for professional services
€ 480.00
Fees for professional services
€ 300.00

Thalassemia International Federation

Fees for professional services
€ 720.00
Fees for professional services
€ 480.00
Fees for professional services
€ 300.00

Finland (2020)

Suomen Syöpäpotilaat

Support for Patient Organisation Information Booklet for MDS Patients
€ 3,000

Sairaalaklovnit

Support for Hospital Clown activities in Children’s Wards
€ 6,000

France (2020)

AF3M – Association Française des Malades du Myélome Multiple

Fees for professional services
€ 1,120.00
Fees for professional services
€ 480.00
Out of pocket/ expenses
€ 675.00
Grants
€ 60,000

France Psoriasis

Fees for professional services
€ 1,520.00

France Lymphome Espoir

Grants
€ 12,000.00
Grants
€ 8,000.00

CCM – Connaitre & Combattre les Myélodysplasies

Fees for professional services
€ 920.00
Out of pocket/ expenses
€ 436.00
Fees for professional services
€ 507.00
Out of pocket/ expenses
€ 120.00

TRANS-FORME

Grants
€ 14,000.00
Sponsorship of Meetings
€ 9,000.00

Association Laurette Fugain

Grants
€ 10,000.00

Ligue Française contre la Sclérose en Plaques

Grants
€ 10,000.00
Grants
€ 20,000.00

Fédération Leucémie Espoir

Grants
€ 4,000.00

Germany (2020)

Leukaemiehilfe RHEIN-MAIN e.V

Fees for professional services
€ 600.00
Fees for professional services
€ 400.00

Hungary (2020)

Magyar Onkohematológiai Betegekért Alapítány

Support for the Myeloma Information Day
9,428 ft (HUF)

Ireland (2020)

Click to view Ireland’s 2020 support for patient organizations

Italy (2021)

AIL – Associazione Italiana contro le Leucemie-linfomi e mieloma ONLUS

Support to association in organizing the National Mieloma Day Press Conference
€ 5,000
Support to association in organizing Fitwalking for AIL awareness raising and fundraising event
€ 5,000
Contribution to Home Care project that allows AIL to assist haematological patients at home
€ 22,500
Contribution to AIL and AIL Provincial Sections’ Easter Campaign to donated Easter Eggs to hematological patients and to healthcare personnel
€ 10,000
Support for the national awareness campaign “CART Destinazione Futuro 2021” promoted by AIL (Indirect support)
€ 33,500
Support to association in organizin 10 webinars for patients, telephone and online counseling service, training project for committed patients on patient advocacy issues
€ 30,000
Support for the national awareness campaign “CART Destinazione Futuro 2022” promoted by AIL (Indirect support)
€ 53,000

AIPAMM – Associazione Italiana Pazienti con Malattie Mieloproliferative

Support to association to realize Educational material for patients with myelofibrosis
€ 20,400
Support for the conference “The Seasons of Life and Illness” organized by AIPAMM and dedicated to patients
€ 8,000

AIPaSiM – Associazione Italiana Pazienti con Sindrome Mielodisplastica

Support association 2021 projects
€ 15,000
Support for the national awareness campaign “Magnifico Donare” promoted by UNITED and AIPaSiM (Indirect support)
€ 21,400

AISM – Associazione italiana Sclerosi Multipla

Contribution to the “Bentonata Gardensia” fundraising initiative during the national multiple sclerosis week equivalent to the purchase of 660 virtual gardensia
€ 10,000
Support for the 13 edition of “Convegno Giovani” event aimed at young people suffering from MS (Indirect support)
€ 25,000
Support for the national awareness campaign “L’apparenza Inganna” on Multiple sclerosis (Indirect Support)
€ 150,000

“ASSOCIAZIONE ITALIANA CONTRO LE LEUCEMIE-LINFOMI E MIELOMA – SEZIONE MILANO E PROVINCIA”

Support for “AIL Welcomes: a home for those in care” project to offer free accommodation and overnight stays to patients forced to commute to health care
€ 10,000

ASSOCIAZIONE per la LOTTA alla TALASSEMIA – Rino Vullo – ODV

Contribution to Alt Ferrara 2021 Planning and conference on 25-26 September 2021
€ 10,000

Associazione per la ricerca Piera Cutino Onlus

Support for the XI edition of the “THALASSEMIA DAY”
€ 15,000
Contribution to the association to donate to the bodies that deal with donations and / or blood transfusions on the national territory Christmas solidarity products – panettone and pandoro
€ 20,000

Fondazione Italiana “Leonardo Giambrone” per la Guarigione dalla Talassemia e Drepanocitosi

Contribution for 2021 association activities: Blood collection program and Social program
€ 10,000

Fondazione Renata Quattropani Onlus

Support the project “Doctors. Patients. Relatives. (MPP): Medical Coaching beyond the COVID-19 emergency in support of patients chronic onco-haematological ” to create creation of 6 new paths of Medical Coaching
€ 15,000

LA LAMPADA DI ALADINO ONLUS

Contribution to the distribution in national oncology/hematology a free version of the book “Ma dal cancro si guarisce?”
€ 10,000
Support the campaign “Articolo 17 – I pazienti hanno diritto di essere attivi” promoted by La Lampada di Aladino Onlus (Indirect support)
€ 10,000

ROMAIL “Vanessa Verdecchia” ONLUS – Associazione Italiana contro le Leucemie-linfomi e mieloma, Sezione di Roma e Provincia

Contibution to ROMAIL “Vanessa Verdecchia” ONLUS Easter Campaign to donated Easter Eggs to Roman Hospitals healthcare personnel
€ 10,000
Support a dedicated call center for patients “PRONTO ASCOLTO Diritti & Tutele”
€ 10,000

UNIAMO Federazione Italiana Malattie Rare Onlus

Support AWARENESS RAISING CAMPAIGN ON THE OCCASION OF THE XI EDITION OF THE WORLD DAY OF RARE DISEASES 2021
€ 5,000
Support multistakeholder tables – focus on orphan drugs and advanced therapies
€ 5,000

UNITED Onlus – Federazione Italiana Thalassemia, Drepanocitosi e Anemie Rare

Contribution to UNITED 2021 activities
€ 27,000
Support for the national awareness campaign “Magnifico Donare” promoted by UNITED and AIPaSiM (Indirect support)
€ 21,400

Netherlands (2020)

Myeloma Patients Europe

Fees for professional services
€ 525.00

Norway (2020)

Blodkreftforeningen

Supported special edition of membership magazine highlighting R&D, with placement of BMS ad
50,000 NOK
AML disease awareness semiar
35,000 NOK

Spain (2020)

Click to view Spain’s 2020 support for patient organizations

Sweden (2020)

Blodcancerförbundet

Fees for professional services
5,880 kr (SEK)

United Kingdom (2020)

Click to view United Kingdom’s 2020 support for patient organizations