Celgene Cooperation With European Patient Organizations

Across Europe Celgene collaborates with patient organizations through support and collaboration on initiatives that make a positive impact on our patients, our communities and our world, today and for years to come. We are committed to improving the lives of patients and focus our support in areas where we can make the greatest impact.
 

Celgene Interaction With European Patient Organizations

According to European regulations Celgene requires European-based patient organizations to subscribe to communications on behalf of Celgene and its third parties. To be compliant with these regulations, Celgene has developed a registry of patient organizations based in Europe where they can provide consent for Celgene to keep in touch, and in what capacity.
 

Celgene Support for European Patient Organization

Across Europe Celgene provides support to organizations and initiatives that make a positive impact on our patients, our communities and our world, today and for years to come. We are committed to improving the lives of patients and focus our support in areas where we can make the greatest impact.

Support for patient organizations in Europe is the responsibility of the local Celgene office in the country in which the patient organization is based and is dependent on local laws and regulations. If you are a European based patient organization and wish to apply for support please contact your local Celgene office for more information. Patient organizations who provide services in more than one European country can apply for support to the Celgene EMEA regional office.

The lists below show all the support given by Celgene for European patient organizations or initiatives in Europe in 2018.
 

Pan European and International

Support for Pan-European patient organizations and International Patient Organizations with offices or activities in Europe:

EMSP

  • Consultation fees for input to Celgene clinical trial design
    € 630.00
  • Support for the EMSP Spring Conference 2018
    € 10,166.10

EuropaColon

  • Support for 2018 pancreatic cancer activities
    € 12,500.00

European Brain Council

  • 12-month EBC membership fees
    € 20,000.00
  • Support for MS Policy Narrative Project
    € 40,000.00

European Cancer Patients Coalition

  • Consultation fees for review of Celgene clinical trial lay summaries
    € 371.70
  • Support for clinical trials seminar and pancreatic cancer activities
    € 25,000.00

European Federation of Crohn’s and Ulcerative Colitis Associations – EFCCA

  • 2018 annual corporate membership
    € 8,474.58
  • Contracted service for Clinical Trials Knowledge Sharing – publication of a Celgene trial on the EFCCA website
    € 10,000.00

European Patients Forum (EPF)

  • Support for EPF’s 2018 Workplan
    € 15,000.00

EURORDIS (European Organization for Rare Diseases)

  • ERTC Membership Fees and support for international initiatives
    € 90,000.00

International Alliance of Dermatology Patient Organizations

  • Participation in 3 sessions at the Celgene Learning Lab at EADV 2018
    € 7,379.29

Lymphoma Coalition

  • Support for the Lymphoma Global Patient Survey
    € 8,474.58
  • Support for the Lymphoma Global Summit
    € 29,661.02

Myeloma Patients Europe

  • Speaking engagement at an internal Celgene meeting, including honoraria, travel and accommodation
    € 1,116.03
  • Support for the Pan-Hematology Community Advisory Board in June 2018
    € 15,000.00
  • Support for MPE’s 2018 activities
    € 100,000.00

Patient Focused Medicine Development / The Synergist

  • Support for the Reasonable Agreements Between Patient Advocacy and the Pharmaceutical Industry initiative (RAPP)
    € 2,000.00

IFPA International Federation of Psoriasis Associations

  • Travel and accommodation to present at a World Psoriasis Day event at Celgene Boudry
    € 1,155.62
  • Participation in 3 sessions at the Celgene Learning Lab at EADV 2018 for IFPA and the Global Psoriasis Coalition
    € 7,379.29
  • IFPA’s Partnership Program and Global Psoriasis Coalition membership fees
    € 95,000.00

International Myeloma Foundation

  • Support for GMAN – Global Coalition that empowers patients through education and advocacy, raises the capabilities of PAGs around the globe, advocates for access to treatments and improves outcomes through education.
    € 127,118.64
  • Support for European Patient and Family Seminars, IMF Publications and translations, Myeloma Minute European Versions
    € 233,050.85

Multiple Sclerosis International Federation

  • Support for Atlas of MS project
    € 6,355.93
  • Support for World MS Day
    € 12,711.86
  • Support for Access to Effective Treatment project
    € 12,711.86
  • Support for informed decision making project
    € 12,711.86

Thalassaemia International Federation

  • Support for e-educational platform for healthcare professionals
    € 16,949.15
  • Support for 2018 educational activities, including publications for patients, ThalPal Mobile App, e-platform for patients, TIF Collaborating Centres Network
    € 57,627.12

EUROPSO

  • Support for the 2018 EUROPSO Annual Meeting and 30th Anniversary Awards Dinner
    € 7,500.00

 

Austria

Myelom- und Lymphomhilfe Österreich

  • Consultation Fees for Celgene Packaging Advisory Board
    € 130.00

ÖMSG gemeinnützige Privatstiftung

  • Support for patient education projects and MS awareness
    € 5,000.00

Pro Rare Austria

  • Support for the organization of Austrian conference for rare diseases and European Conference on Rare Diseases & Orphan Products; creation of a national action plan for rare diseases; relaunch of website
    € 3,000.00

PsO Austria – Verein und Selbsthilfegruppe der PsoriatikerInnen Österreichs

  • Support for the organization of PsO information day
    € 400.00

SHG Pankreaskarzinom

  • Support for website maintenance and printing costs for flyer
    € 1,000.00

 

Belgium

CMP Vlaanderen

  • Grant for the daily activities of the organization
    € 4,000.00
  • Grant for patient survey in collaboration with MyMu
    € 8,077.00

European Patient’s Academy (EUPATI) Belgium

  • Support for the organization of Patiëntenforum 2018
    € 1,500.00

GIPSO asbl

  • Grant for the daily activities of the organization
    € 3,250.00

MyMu

  • Grant for the daily activities of the organization
    € 4,000.00
  • Grant for patient survey in collaboration with CMP Vlaanderen
    € 8,077.00

Psoriasis Liga Vlaanderen

  • Grant for projects and activities in 2018
    € 3,000.00

Psoriasis-Contact

  • Support for the daily activities of the organization
    € 3,000.00

Reumanet vzw Belgium

  • Grant for the support of activities in 2018 and creation of a patient brochure
    € 5,000.00

 

Bosnia and Herzegovina

Mijelom u BIH

  • Support for the meeting “You are not alone” for MM and MDS patients
    € 3,000.00

Savez za Rijetke bolesti Republike Srpske

  • Support for the organization of Rare Disease Day 2018
    € 1,000.00

 

Croatia

Croatian Psoriasis Association

  • Support for a public campaign for World Psoriasis Day
    € 1,000.00
  • Support for reprinting of booklets, update of webpage and patient’s awareness meeting
    € 4,000.00

Croatian Alliance for rare diseases

  • Support for Rare Disease Day 2018 and The 5th National Conference on Rare Diseases
    € 4,500.00

Croatian society leukemia and lymphoma

  • Support for 2018 projects: Health through knowledge, I have only one wish, Blood cancer exists and multiple hematology World Awareness Days
    € 2,645.76

Myeloma CRO

  • Support for 2018 meetings, including: Lecture and discussion between patients and doctors on Multiple Myeloma and Myeloma South East Europe Network AB
    € 2,645.76
  • Support for travel expenses to attend the CEE Health Innovation Forum in Warsaw, Poland
    € 194.35
  • Support for a delegate to attend the CEE Health Innovation Forum in Warsaw, Poland
    € 930.00

 

Czech Republic

Mnohočetný myelom klub pacientů

  • Support for the project “Should Myeloma be Painful” and tailored educational activities for myeloma patients
    € 2,528.39
  • Support of Multiple Myeloma patient group activities in 2018
    € 11,669.49

OnkoMajak

  • Support for the campaign “Pancreatic cancer in the Czech republic”.
    € 23,436.23

Spolek Diagnóza leukemie, z.s

  • Support of MDS patient group activities in 2018
    € 18,671.19

Spolek psoriatiků a atopických ekzematiků (SPAE)

  • Attendance at an educational activity held in Warsaw
    € 1,478.68
  • Participation at the Celgene Learning Lab (gift in kind)
    € 2,459.76
  • Support to attendance at the EADV 2018 congress in Paris
    € 3,660.45
  • Support for 3 delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
    € 2,670.00

 

Denmark

Dansk Myelomatose forening

  • Support for 2018 network meetings
    € 2,012.29

FAIM

  • 2018 membership fees
    € 200.00
  • Support for a conference on autoimmune diseases
    € 3,354.00

Lungekræft

  • 2018 membership fee
    € 533.00

LyLe

  • Support for patient and family seminar
    € 16,000.00

Psoriasisforeningen DK

  • 2018 Membership fee
    € 253.00
  • Support for the PSOMentor Application
    € 2,000.00

Scleroseforeningen

  • Sponsorship of Cykelnerven Disease awareness
    € 33.333.00

 

Finland

Psoriasisliitto

  • Support for World Psoriasis Day
    € 2,200.00

Suomen Syöpäpotilaat Finish Cancer Patients

  • Consultation Fees for Celgene Packaging Advisory Board
    € 130.00
  • Support for EHA Sharing best practice meeting among Nordic PAG
    € 280.95
  • Support for the project: Beating Cancer with Life Science
    € 300.00
  • Support for the EUPATI network
    € 3,700.00

 

France

AF3M

  • Contracted service for consulting in a video with patient testimonials including honoraria of AF3M and related transportation
    € 368.00
  • Contracted service for consulting RC3M board: project to develop a multiple myeloma competency repository
    € 640.00
  • Contracted speaking engagement for annual “Ateliers Celgene” meeting with French HCPs including honoraria, transportation and meals
    € 932.00
  • Contracted service for the review of a draft Informed Consent Form template for clinical studies
    € 1,120.00
  • Supply of 2000 information leaflets for the National Multiple Myeloma Day
    € 2,620.00
  • Grant to support National Multiple Myeloma Day in 25 French towns
    € 60,000.00

Association de Soutien et d’Information à la Leucémie Lymphoïde Chronique et la maladie de Waldenström (SILLC)

  • Contracted service for consulting in a video of patients testimonials including SILLC honoraria and patient’s transportation
    € 455.00

Association Française du Vitiligo

  • Participation at the Celgene Learning Lab at EADV 2018
    € 2,459.76

Association la Compagnie des Aidants

  • Grant to support the development of a self-training platform
    € 50,000.00

France Lymphome Espoir

  • Contracted service for consulting in a video of patients testimonials including FLE honoraria and transportation of patient
    € 261.00
  • Grant to support the meeting “Lymphormons-nous” in the town of Nantes
    € 5,000.00
  • Grant to support World Lymphoma Day in various locations in France
    € 15,000.00
  • Consultation Fees for Celgene R&D (CAR T)
    € 480.00

France Psoriasis

  • Contracted service for consulting in a video with patients testimonials including Fr Pso honoraria and transportation of patient
    € 768.00
  • Participation at the Celgene Learning Lab at EADV 2018
    € 2,459.76
  • Contracted service for consulting in the “PSOPRO” project, the national survey of the impact of psoriasis on patients lives, including honoraria and transportation
    € 7,697.00
  • Grant to support World Psoriasis Day
    € 25,000.00

Lymphoma Coalition

  • Consultation fees for review of Celgene clinical trial lay summaries
    € 566.40

TRANS-FORME

  • Grant in the context of inter enterprise consortium to support sports-medico events of TransForme
    € 4,500.00
  • Grant to support two running event as part of an organ donation awareness campaign “Course du Coeur” (Paris- Bourg St Maurice- les Arcs) 2018 and 2019
    € 35,400.00

 

Germany

Greece

EOTHA – Greek Thalassaemia Federation

  • Supporter-level sponsorship of National Educational-Informative Conference
    € 10,000.00

ESTHA Greek Thalassemia association

  • Support for Educational meeting for patients, focused on liver, kidney and endocrinological complications in Thalassaemia
    € 5,000.00

K.E.FI OF ATHENS – ASSOCIATION OF CANCER PATIENTS

  • Impact PANC 2017 Award Program
    € 16,949.15

 

Hungary

Az Egészségügyben dolgozókért 2009 Alapítvány

  • Support the yearly activities of the Oncohematology Patient Club, including support for travel of patients to events within Hungary
    € 1,567.80

 

Ireland

Italy

A.D.I.PSO. – Associazione per la Difesa degli Psoriasici Onlus

  • Support for the publication of the magazine ADIPSO News
    € 5,000.00
  • Support for World Derma Day
    € 10,000.00
  • Support for the ‘X International Congress on Psoriasis and Psoriatic Arthritis’
    € 22,000.00

A.M.R.E.R. – Associazione Malati Reumatici Emilia Romagna

  • Support for the training course “Formare le Associazioni impegnate per la salute”
    € 1,000.00

A.Ma.R.V. Onlus_Associazione malati reumatici del Veneto

  • Support for the event ‘Sessualità e Gravidanza nelle Malattie reumatiche’
    € 2,500.00

Accademia dei pazienti Onlus

  • Cost for participation at the project focused on Psoriatric Arthritis ‘Light on Contest’
    € 1,109.00

AIL – Associazione Italiana contro le Leucemie-linfomi e mieloma ONLUS

  • Consultation fees for Celgene packaging advisory board
    € 153.40
  • Consultation Fees for Celgene R&D (CAR T)
    € 400.00
  • Support for ‘Sportello Sociale AIL’
    € 2,500.00
  • Support for the project ‘Numero Verde AIL problemi ematologici’
    € 3,500.00
  • Support for an AIL meeting with Patients and Clinicians focused on Lymphoma
    € 5,000.00
  • Support for the AIL national press conference for the National Hematological Day
    € 5,000.00
  • Support for two AIL meetings with Patient and Clinicians focus on Multiple Myeloma
    € 10,000.00
  • Support for the national awareness campaign ‘Mieloma ti Sfido-Io non mi lascio cadere’ promoted by AIL and La Lampada di Aladino
    € 70,000.00
  • Support for the project ‘AIL Homecare Assistance’ to hematological patients to harmonize and guarantee national quality standards
    € 100,000.00

AIL Italian Association against Leukemia, Lymphoma and Multile Myeloma Onlus, Milano

  • Support for the project ‘AIL Accoglie’
    € 12,500.00

AIL Italian Association against Leukemia, Lymphoma and Multiple Mieloma Onlus, Avellino

  • Support for the project ‘homecare assistance to hematological patients’
    € 5,000.00

AIL Italian Association against Leukemia, Lymphoma and Multiple Mieloma Onlus, Catania

  • Support for the project ‘Homecare Assistance to hematological patients’
    € 15,000.00

AIL Italian Association against Leukemia, Lymphoma and Multiple Mieloma Onlus, Genova

  • Support for the project ‘Casa AIL Genova’ focused on hematological patient support during treatment
    € 12,500.00

AIL Italian Association against Leukemia, Lymphoma and Multiple Mieloma Onlus, Verona

  • Support for a project focused on improving the management of hematological patients
    € 10,000.00

AIL-Associazione italiana contro le leucemie-linfomi e mieloma -Bergamo

  • Support for the project ‘La prima accoglienza in Ospedale’
    € 10,000.00

AIL-Associazione Italiana contro le leucemie-Linformi e Mieloma-Forlì-Cesena

  • Support for the project ‘ViviAil’
    € 15,000.00

AIPaSiM Associazione Italiana Pazienti con Sindrome Mielodisplastica

  • Support for the first national AIPaSiM Forum focused on MDS
    € 10,750.00
  • Support for the second national AIPaSiM Forum focus on MDS to improve patients’ quality of life
    € 10,750.00

AISCUP – Associazione Italiana per lo Studio e la Cura del Paziente oncologico ONLUS

  • Support for a therapeutic education project aimed at patients at risk of suffering from oncological lymphedema
    € 10,000.00

AMOS – Amici dell’Oncologia del San Matteo Onlus

  • Support for a project focused on improving information available to patients about their oncological disease
    € 5,000.00

ANMAR Associazione Nazionale Malati Reumatici

  • Cost for participation at a project focused on psoriatic arthritis ‘Light on Contest’
    € 1,069.00
  • Support for World Rheuma Day
    € 5,000.00
  • Support for the project ‘Le malattie reumatologiche e il Lavoro’
    € 10,000.00
  • Support for the training course “Formare le Associazioni impegnate per la salute”
    € 1,000.00

APMAR Associazione Persone con Malattie Reumatologiche e Rare

  • Support for the implementation of ‘Numero Verde and Sito Web’
    € 10,000.00
  • Support for World Rheuma Day
    € 10,000.00
  • Cost for participation at a project focused on psoriatic arthritis ‘Light on Contest’
    € 1,105.00
  • Support for the training course “Formare le Associazioni impegnate per la salute”
    € 1,000.00

CODICE VIOLA Onlus

  • Support for World Pancreatic Day
    € 3,000.00

Europa Donna – Italy

  • Support for a project focus on psychological support for metastatic breast cancer patients
    € 12,000.00

F.e.D.E.R. – Federazione Diabetici Emilia Romagna

  • Support for the training course “Formare le Associazioni impegnate per la salute”
    € 1,000.00

Federasma e Allergie Onlus

  • Support for the training course “Formare le Associazioni impegnate per la salute”
    € 1,000.00

Fondazione Nadia Valsecchi Onlus

  • Support for the development of a website for pancreatic cancer patients
    € 2,542.37

Insieme contro il cancro

  • Costs for Insieme Contro il Cancro books
    € 6,000.00
  • Support for a fundraising dinner
    € 7,500.00

LA LAMPADA DI ALADINO ONLUS

  • Support for the project ‘Essere Sempre Donna’ focused on taking care of the person and not just the disease
    € 847.00
  • Support for the national awareness campaign ‘Mieloma ti Sfido-Io non mi lascio cadere’ promoted by AIL and La Lampada di Aladino
    € 70,000.00

Salute Donna – Associazione per la Prevenzione e lotta ai tumori femminili Onlus

  • Support for a training programme for the ‘Salute Donna’ volunteers
    € 4,000.00
  • Support for the project ‘La salute un bene da difendere, un diritto da promuovere’
    € 20,000.00

UNIAMO Federazione Italiana Malattie Rare Onlus

  • Support for Rare Disease Awareness Day
    € 5,000.00
  • Support for UNIAMO projects ‘SAIO and RINGS’ focused on Listening Service and to create a network generating solutions for patients
    € 20,000.00

UNITED Onlus – Federazione Italiana Thalassemia, Drepanocitosi e Anemie Rare

  • Support for UNITED projects and events focused on patients empowerment and disease education
    € 2,500.00

WALCE Women against Lung cancer in Europe Onlus

  • Support for the national campaign ‘Esci dal tunnel non bruciarti il futuro’
    € 3,000.00

 

Lithuania

OHLB “Kraujas”

  • Support for the organization of Blood Day
    € 1,300.00
  • Support for the organization of Blood Day
    € 1,700.00
  • Preparation and publication of myeloma information and booklet and PR activities
    € 3,000.00

 

Republic of North Macedonia

National Alliance for Rare Diseases of Macedonia (NARDM) LIFE WITH CHALLENGES Bitola

  • Support for the organization of Rare Disease Day 2018 and a patients marathon
    € 2,500.00

 

Netherlands

Alvleesklier vereniging NL

  • Support for Alvleeskliervereniging activities for patients with pancreatic diseases
    € 2,500.00

Huidfonds

  • Support for Huidfonds activities for patients with skin diseases
    € 5,000.00

Huidpatiënten Nederland

  • Support for a patient information event – Happy met je Huid festival
    € 5,000.00

MS Vereniging

  • Support for a patient information event – MS and work
    € 4,558.00

Reumazorg Nederland

  • Support for a patient event for patients with rheumatic diseases
    € 1,750.00
  • In kind donation of ´Inzichtbaar´ books that were published by Celgene that feature patient stories
    € 6,100.00

 

Norway

Blodkreftforeningen

  • Disease awareness through support of BKF membership publication
    € 1,271.19
  • Support for national member survey 2018
    € 3,559.32

 

Poland

ALIVIA – Oncological Foundation of Young People

  • Support for the educational campaign “Prosto w raka”
    € 14,222.03
  • Support for delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
    € 250.00

Carita Foundation – Living with Multiple Myeloma

  • Support for the national congress for MM patients
    € 54,517.80
  • Support for delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
    € 2,600.00

Hospice Foundation – Fundacja Hospicyjna

  • Organization of 3 editions of educational training for nurses and medical carers
    € 11,851.69

National Forum for Rare Diseases ORPHAN

  • Support for National Awareness Day on Rare Diseases and nationwide awareness campaign on rare diseases
    € 3,555.51
  • Support for the organization of an HTA conference: Rare Diseases and Orphan Drugs – challenges for Poland
    € 12,041.32
  • Support for delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
    € 320.00

Ogólnokrajowe Stowarzyszenie Pomocy Chorym na Przewlekłą BIałaczkę Szpikową/National Association for CML Patients Help

  • Donation for regional support groups
    € 11,851.69
  • Support for delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
    € 1,600.00

Polskie Stowarzyszenie Pomocy Chorym na Szpiczaka/Polish Association for MM Patients Aid

  • Support for educational workshops for MM patients in Torun
    € 31,013.52
  • Support for the organization of XIII Educational Congress for MM patients
    € 42,666.10
  • Support for three projects: Social campaign “Back pain”; Educational campaign to raise the awareness on MM; Social media campaign
    € 52,147.46
  • Support for delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
    € 5,000.00

Together in Disease Foundation – Fundacja Razem w Chorobie

  • Support for educational forum of PAGs
    € 23,703.39

Unia Stowarzyszen Chorych na Łuszczyce i ŁZS

  • Support for delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
    € 320.00

Ursula Jaworska’s Foundation (Fundacja Urszuli Jaworskiej)

  • Support for delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
    € 600.00

Foundation Hospice of Saint Christoph (Fundacja Hospicjum Onkologiczne Sw. Krzysztofa)

  • Support for delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
    € 250.00

Polish Cancer Patients Coalition (polska Koalicja Pacejntow Onkologicznych)

  • Support for delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
    € 600.00

Stowarzyszenie Wsperające Chorych na Chłoniaki – Sowie Oczy

  • Support for delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
    € 630.00

 

Portugal

Associação Nacional de Esclerose Múltipla

  • Support for ANEM 2018 activities
    € 3,000.00

Associação Portuguesa Contra a Leucemia – APCL

  • Support for Projecto Casa Porto Seguro
    € 5,000.00

Associação Portuguesa de Leucemias e Linfomas (APLL)

  • Support for Sessão Comemorativa do Dia Internacional dos Ensaios Clínicos
    € 15,000.00

Europacolon Portugal – Associação de Luta Contra o Cancro do Intestino

  • Support for Comemoração Dia do Cancro Pancreático
    € 10,000.00

Liga Portuguesa Contra o Cancro

  • Support for Premio Jornalismo 2017
    € 5,000.00

Liga Portuguesa Contra o Cancro – Nucleo Regional do Centro

  • Support for Comemoração quinquagésimo aniversário da LPCC
    € 1,500.00

 

Russian Federation

All-Russian public organization «Ligue patients’ defenders»

  • Support for the 8th Russian National Right to Medications Congress
    € 10,084.75

All-Russian public organization of disabled people «Russian Society of Hematology “SODEJSTVIE” (RSH «SODEJSTVIE»)

  • Support for 8 regional roundtables
    € 4,322.03

Interregional Charitable Public Organization “Skin and Allergic Diseases”

  • Participation in 2 sessions at the Celgene Learning Lab at EADV 2018
    € 4,919.53
  • Support for two webinar events for people with psoriasis and/or psoriatic arthritis and a social campaign “Remission is possible” on the Internet and social networks
    € 6,483.05
  • Support for activities for patients with PsO and PsA; Three “Schools of psoriasis and psoriatic arthritis” in Russia; and preparing informational printed materials for patients
    € 10,805.08

Inter-regional public organization for patients with hematological diseases Mercy Bridge

  • Support for the development of a website, donor initiatives, and patient workshops
    € 27,516.95

National Association of the organizations for patients with rare diseases “Genetics”

  • Support for three round tables held in 3 regions (St. Petersburg, Leningrad Region, Moscow Region)
    € 9,364.41
  • Support for the Altaian regional conference “Rare diseases yesterday, today and tomorrow” and two regional round tables
    € 9,364.41

RUSSIAN PATIENTS ASSOCIATION

  • Support for the Ninth All-Russian Congress of Patients
    € 10,084.75

 

Serbia

National Organization for Rare Diseases Serbia

  • Support for education about rare diseases project and a regional rare disease Balkan conference
    € 5,000.00
  • Support for travel expenses to attend the CEE Health Innovation Forum in Warsaw, Poland
    € 402.59
  • Support for a delegate to attend the CEE Health Innovation Forum in Warsaw, Poland
    € 930.00

The Association of Myeloma Patients of Serbia

  • Support for a meeting of Myeloma today
    € 1,500.00

 

Slovakia

NIE Rakovine o.z.

  • Support for patient association in printing of the interactive books for inpatients (details enclosed)
    € 5,000.00
  • Support for the “Oncology Patient Project”
    € 10,000.00
  • Support for communication activities for patients, nurses, HCPs, members meeting – seminar, psycho-social support and advice
    € 15,000.00
  • Support for 2 delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
    € 1,800.00

ONKOINFO o.z.

  • Support for the creation, maintenance, technical and administrative support of Onkoinfo web portal.
    € 10,000.00

OZ Slovenský pacient

  • Support for the publication of 15 dermatology focused articles on the website www.slovenskypacient.sk and print versions
    € 4,000.00

Spoločnosť psoriatikov a atopikov SR

  • Support for the project Rise Up Against Psoriasis and related webpage www.vzoprisapsoriaze.sk, and the organization of Hug Day
    € 28,560.00

Združenie pacientov s hematologickými malignitami

  • Support for patient education
    € 16,200.00
  • Support for a delegate to attend the CEE Health Innovation Forum in Warsaw, Poland
    € 930.00

 

Slovenia

Association of patients with blood diseases

  • Support for a guidelines booklet for MDS patients
    € 3,000.00
  • Support for patient social programs in 2018
    € 7,000.00
  • Support for 2 delegates to attend the CEE Health Innovation Forum in Warsaw, Poland
    € 1,800.00

Slovenian Association of Lymphoma and Leukaemia Patients

  • Support for a holistic rehabilitation program, booklet for patients and the Back to Life awareness campaign
    € 5,500.00
  • Support for travel expenses to attend the CEE Health Innovation Forum in Warsaw, Poland
    € 366.85
  • Support for a delegate to attend the CEE Health Innovation Forum in Warsaw, Poland
    € 930.00

 

Spain

Sweden

Blodcancerförbundet

  • Consultation Fees for Celgene Packaging Advisory Board
    € 98.33
  • Support for Lymfomsatsning event
    € 1,968.65
  • Sponsorship of the Swedish MDS & AML Day 2.0
    € 4,001.02
  • Sponsorship of Inga fler utredningar
    € 7,926.78

Nätverket mot cancer

  • Sponsorship of World Cancer Day
    € 1,314.54

Psoriasisförbundet

  • Sponsorship of World Psoriasis Day
    € 3,010.17

Ung med Psoriasis

  • Support for “Movies with clothes for young psoriasis patients”
    € 3,539.96

 

Switzerland

ho/noho – Schweizerische Patientenorganisation für Lymphombetroffene und Angehörige

  • Support for disease awareness activities
    € 8,936.82

MKgS – Myelom Kontaktgruppe Schweiz

  • Support for Patient Survey & Communications Channels
    € 29,960.59

Rheumaliga Schweiz

  • Support for annual activities
    € 8,560.17

Schweizerische Pankreasstiftung

  • Support for disease awareness activities
    € 30,816.61

SKS – Stiftung zur Förderung der Knochenmarkstransplantation Schweiz

  • Support for patient groups
    € 17,120.34

SPVG

  • Support for public disease awareness
    € 31,255.32

SSP – Schweizer Selbsthilfeorganisation Pankreaserkrankungen

  • Support for disease awareness activities
    € 6,420.13

Survival Story

  • Support for disease awareness activities
    € 7,345.48

 

Turkey

Cancer Fighters Association

  • Donation to the project: ‘Patient School for Multiple Myeloma Patients’
    € 3,306.36

Leukemia Lymphoma Myeloma Patients and Research & Education Association

  • Donation to support association’s meeting titled ‘Multiple Myeloma Diagnosis and Treatment Approaches for Hematologists’
    € 3,306.36
  • Donation to support association’s ‘6th Leukemia Lymphoma Myeloma Patients Congress’
    € 6,612.71

Thalassemia Federation

  • Support for Thalassaemia meeting
    € 3,306.36

 

United Kingdom