Celgene Support for European Patient Organizations

Across Europe Celgene provides support to organizations and initiatives that make a positive impact on our patients, our communities and our world, today and for years to come. We are committed to improving the lives of patients and focus our support in areas where we can make the greatest impact.

Support for patient organizations in Europe is the responsibility of the local Celgene office in the country in which the patient organization is based and is dependent on local laws and regulations. If you are a European based patient organization and wish to apply for support please contact your local Celgene office for more information. Patient organizations who provide services in more than one European country can apply for support to the Celgene EMEA regional office.

The list below shows all the support given by Celgene offices in Europe during 2016.

Pan-European

International Patient Organizations with Activities in Europe:

Active Citizenship Network/ Cittadinanzattiva Onlus

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 1,609.36

EuropaColon

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 1,729.91

European Cancer Patients Coalition

  • 2016 – Support for ECPC pancreatic cancer activities and support for the ECPC AGM
    € 25,000.00

European Patients Forum (EPF)

  • 2016 – Grant to support EPF’s Capacity Building Programme
    € 30,000.00

EURORDIS (European Organization for Rare Diseases)

  • 2016 – EURORDIS Round Table of Companies (ERTC) membership fees
    € 25,000.00
  • 2016 – EURORDIS Awards and Black Pearl Evening and the Multi-stakeholder Symposium to improve access to rare disease therapies on 24th and 25th February 2016
    € 30,000.00
  • 2016 – EURORDIS’ International Initiatives including RareConnect, Rare Barometer and Rare Diseases International
    € 30,000.00
  • 2016 – Contribution for the project “RareConnect Online Rare Disease Communities”
    € 50,000.00
  • 2016 – Speaking engagement during the Celgene Innovation summit, including transportation, accommodation and meals
    € 1,004.31

IFPA International Federation of Psoriasis Associations

  • 2016 – 2016 Silver Sponsorship
    € 65,000.00
  • 2016 – IFPA Solidarity Fund Donation
    € 10,000.00

International Myeloma Foundation

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 3,256.51
  • 2016 – Support for 15 Patient and Family Seminars in 17 European countries
    € 166,284.40
  • 2016 – Support for Myeloma Minute EU Versions in Spanish, German, French and Italian
    € 53,211.01
  • 2016 – IMF Publications and Translations for the “Patient handbook” and “Understanding Series”
    € 32,798.17

Lymphoma Coalition

  • 2016 – Support for the European information programme, including analysis of information on lymphomas and CLL from LC database and global patient survey
    € 20,000.00
  • 2016 – Grant to support World Lymphoma Awareness Day (WLAD) in Europe
    € 30,000.00

Myeloma Patients Europe

  • 2016 – Support for educational and outreach programmes and projects to benefit the Myeloma community
    € 100,000.00
  • 2016 – Attendance for two participants at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 2,411.29
  • 2016 – Representation of MPE to host at the Celgene Innovation summit, including transportation, accommodation and meals
    € 1,163.70

Thalassaemia International Federation

  • 2016 – Donation to support the Educational Platform for Patient Education in 2016
    € 18,348.62
  • 2016 – Support for the Development of Telemedicine/Tele-Expertise Services in 2016
    € 9,174.31
  • 2016 – Support of 2nd Pan Middle East Conference
    € 27,522.94
  • 2016 – Support of HbE Beta Thalassemia Conference
    € 9,174.31
  • 2016 – Support for Educational Platform for Physician Education in 2016
    € 18,348.62

Austria

Forum Psoriasis-Selbsthilfegruppe für Menschen mit Psoriasis

  • 2016 – Support for Info-Page on patient group website homepage
    € 1,800.00

Multiples Myelom Selbsthilfe Österreich

  • 2016 – Support to run patient meetings and symposia throughout the year
    € 10,000.00

Myelom- und Lymphomhilfe Österreich

  • 2016 – Support to run patient meetings and symposia throughout the year
    € 10,000.00

PsO Austria – Verein und Selbsthilfegruppe der PsoriatikerInnen Österreichs

  • 2016 – Sponsorship for PsO Austria Journal, Edition 02/2016
    € 1,400.00

SHG Pankreaskarzinom

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 927.04
  • 2016 – Support for 2016 activities
    € 3,000.00
  • 2016 – Support for a patient seminar
    € 2,000.00

Belgium

CMP Vlaanderen

  • 2016 – Attendance for two participants at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 2,832.46
  • 2016 – Grant to support the daily operations of the organization for 2016
    € 4,000.00
  • 2016 – Support for a patient questionnaire on Multiple Myeloma and Waldenström conducted by patient organizations CMP Vlaanderen and MyMu
    € 3,612.50

GIPSO asbl

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 1,706.26
  • 2016 – Grant to support GIPSO association: contribution to the publication of their newsletter and all the GIPSO activities
    € 2,500.00

MyMu

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 1,706.26
  • 2016 – Grant to support the daily operations of the association for 2016
    € 4,000.00
  • 2016 – Support for a patient questionnaire on Multiple Myeloma and Waldenström conducted by patient organizations CMP Vlaanderen and MyMu
    € 3,612.50

Psoriasis Liga Vlaanderen

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 1,706.26
  • 2016 – Educational grant to support the development and performance of an independent medical educational activity entitled WPSD
    € 2,000.00

Psoriasis-Contact

  • Grant to support PSO-Contact association: contribution to the publication of their newsletter and all the PSO-Contact activities
    € 2,000.00

 

Bosnia

Savez za Rijetke bolesti Republike Srpske

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 1,655.14
  • 2016 – Attendance at an HTA workshop in Belgrade, including transportation, accommodation and meals
    € 803.07

Bulgaria

No grants were made in 2016

Croatia

Croatian Alliance for Rare Diseases 

  • 2016 – Grant to support 2016 projects: Helpline for Rare Diseases, Orphanet Croatia, education of leaders, and public awareness
    € 3,000.00

Croatian Psoriasis Association

  • 2016 – Grant to support disease education for people with Psoriasis and PSA
    € 3,000.00

Myeloma CRO

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 1,574.75
  • 2016 – Support for 2016 projects: Patient information materials, new book on treatment and protocols, and patient and doctors information day
    € 5,000.00
  • 2016 – Attendance at an HTA workshop in Belgrade, including transportation, accommodation and meals
    € 1,625.44

Cyprus

No grants were made in 2016

Czech Republic

Mnohočetný myelom klub pacientů

  • 2016 – Support for local educational events
    €11,119.27

 

Denmark

Dansk Myelomatose forening

  • 2016 – Attendance for two participants at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 2,684.40
  • 2016 – Competence building for support persons in the organization
    € 6,711.01
  • 2016 – Updating and printing of caregiver materials
    € 3,678.44

LyLe

  • 2016 – Attendance for two participants at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 2,684.40
  • 2016 – Support for LyLe activitites, including LyLe patient conference, MDS/AML patient meeting and focus magazine on MDS/AML
    € 20,133.03

Pancreasnetvaerket i Danmark

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 1,342.20

Psoriasisforeningen DK

  • 2016 – Grant to support participation at EADV congress 2016
    € 2,998.48
  • 2016 – Grant for development and launch of psoriasis patient app
    € 6,711.01
  • 2016 – Sponsorship of participation in LIF trade association patient education
    € 1,207.98
  • 2016 – Sponsorship for activities at political week Folkemodet 2016
    € 7,106.96
  • 2016 – Support for political follow-up activities from World Psoriasis Day 2015
    € 4,026.61
  • 2016 – Sponsorship for participation in AAD congress
    € 2,684.40

Estonia

Estonian Myeloma Society (Eesti Müeloomiliit)

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 1,959.84
  • 2016 – Support for 2016 activitites: Patients and family education, website development, and other activities influencing quality of life for people with Multiple Myeloma
    € 4,000.00
  • 2016 – Attendance at an HTA workshop in Belgrade, including transportation, accommodation and meals
    € 1,404.32

Finland

Psoriasisliitto

  • 2016 – Grant for World Psoriasis Day 2016
    € 2,000.00

Suomen Syöpäpotilaat Finish Cancer Patients

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 600.00
  • 2016 – Patient and family meeting for people living with cancer and pancreatic cancer
    € 7,000.00

France

AF3M

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 1,509.00
  • 2016 – Grant to support National Multiple Myeloma day (Oct 16) in 25 French towns
    € 60,000.00
  • 2016 – Participation on three boards dedicated to reference table of skills for MM patients (January, May and November 2016) including fees, transportation and meals
    € 5,270.00

ARCAD

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 1,634.00
  • 2016 – Payment of agency fees (Elan Edelman) to support the conception of communications for World Pancreatic Cancer Day
    € 40,000.00
  • 2016 – Moderation during a symposium of the JFHOD (French speaking Day for hepatogastroenterology and digestive oncology) including fees and meal
    € 1,360.00

Association Française des Aidants

  • 2016 – Grant to support activities for caregivers
    € 10,000.00

France Lymphome Espoir

  • 2016 – Grant to support participation of a sailor with lymphoma in the maritime race “Route du Rhum”
    € 5,000.00
  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 1,722.00
  • 2016 – Grant to support World Lymphoma Day and to support a lymphoma symposium in Lyon
    € 15,000.00

France Psoriasis

  • Attendance for two participants at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 3,337.00
  • 2016 – Support for World Psoriasis Day
    € 15,000.00
  • 2016 – Support for a national survey about dermatologists and management of rheumatologic symptoms of patients with psoriasis
    € 4,250.00
  • 2016 – Collaboration on a national survey (quantitative and qualitative) of the impact of psoriasis on patients’ lives
    € 8,325.00
  • 2016 – Payment of agency fees (Ipsos) to support the realization of a survey of the impact of psoriasis on patients’ lives
    € 33,600.00

ROSE

  • 2016 – Support for the creation of and editing of a women’s magazine for patients
    € 5,000.00

Germany

Greece

No grants were made in 2016.

Hungary

MOHA – Foundation for Hungarian Oncohaematological Patients

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    €1,538.00
  • 2016 – Annual grant to support patient group activities
    € 6,422.02

Ireland

Israel

Amen – Israeli Association of Myeloma Patients

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 1,541.40

Struggle for Life

  • 2016 – Attendance for two participants at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 2,832.14

Italy

A.D.I.PSO. – Associazione per la Difesa degli Psoriasici Onlus

  • 2016 – Support for World Psoriasis Day 2016 in Italy
    € 20,000.00
  • 2016 – Support for the publication of the magazine ‘ADIPSO news’
    € 5,000.00
  • 2016 – Support for the ‘IX International congress on Psoriasis and Psoriatic Arthritis’ organized by ADIPSO
    € 12,200.00

A.M.R.E.R. Associazione Malati Reumatici Emilia Romagna

  • 2016 – Support for an event on psoriatic arthritis, rheumatoid arthritis and ankylosing spondylitis
    € 6,100.00

Accademia dei pazienti Onlus

  • 2016 – Support for activities for a project on patient empowerment and expert patient programme
    € 20,000.00

Active Citizenship Network/ Cittadinanzattiva Onlus

  • 2016 – Support for the layout and the printing of the document ‘carta dei diritti del malato’
    € 5,000.00

AIL Italian Association against Leukemia, Lymphoma and Multiple Mieloma Onlus, Ascoli Piceno

  • 2016 – Support for the event ‘Hematology today: meeting with patients and citizens’
    € 6,920.00

AIL Italian Association against Leukemia, Lymphoma and Multiple Mieloma Onlus, Bologna

  • 2016 – Support for the project ‘Homecare Assistance to Hematological Patients’
    € 25,000.00

AIL Italian Association against Leukemia, Lymphoma and Multiple Mieloma Onlus, Catania

  • 2016 – Support for the project ‘Homecare Assistance to Hematological Patients’
    € 15,000.00

AIL Italian Association against Leukemia, Lymphoma and Multiple Mieloma Onlus, Piemonte, Torino

  • 2016 – Support for the ‘Transferring Patient’ project
    € 5,000.00

AIL Italian Association against Leukemia, Lymphoma and Multiple Myeloma Onlus, Milano

  • 2016 – Support for the ‘Genoma Project’, the next generation sequencing applications in diagnostics and molecular characterization of lymphoproliferative disorders
    € 10,000.00

AIL-Italian Association Against Leukemia, Lymphoma and Multiple Mieloma Onlus, Barletta

  • 2016 – Support the project ‘Relational coaching in the healthcare’
    € 6,100.00

ALOMAR Associazione Lombarda Malati Reumatici

  • 2016 – Support for a project on ‘How to better use and preserve/protect joints in daily activities’
    € 5,000.00

ANDOS Onlus Women National Association with Breast Cancer, Pordenone

  • 2016 – Support for a project on relaxation techniques and visualization to sustain oncology patients
    € 13,000.00

ANDOS Onlus Women National Association with Breast Cancer, Torino

  • 2016 – Support for the ‘Call Contact Center Multilingual’ project, aimed to humanize places of care and support patients in treatment
    € 5,000.00

ANDOS Onlus Women National Association with Breast Cancer, Verona

  • 2016 – Support for the event ’30 years ANDOS Verona’
    € 3,000.00

ANMAR Associazione Nazionale Malati Reumatici

  • 2016 – Support for a project on the empowerment of regional and national leaders of patient organization ‘Insieme per crescere’
    € 45,000.00
  • 2016 – Support for an event organized by ANMAR Onlus for World Rheumatic Day 2016
    € 15,000.00

APMAR Associazione Persone con Malattie Reumatiche

  • 2016 – Support for the event ‘Digitization technologies for Patients Association’’
    € 12,234.00

APSO Associazione per la Promozione dei Servizi in Oncologia Onlus

  • 2016 – Support for Home Care Assistance for oncology patients
    € 7,000.00

Bianco Airone

  • 2016 – Support for a project on the activation and development of a psychological point of listening in Hematology
    € 10,000.00

Cuore di Donna

  • 2016 – Support for a project on hospitality, assistance and psychological and social support for cancer patients
    € 2,000.00

Dynamo Camp

  • 2016 – Charity donation for Milano Marathon
    € 2,800.00

F.A.V.O. Federazione Italiana delle Associazioni di Volontariato in Oncologia

  • 2016 – Support for the development of a booklet on pancreatic cancer
    € 10,000.00
  • 2016 – Support for the development of an informative brochure about pancreatic cancer
    € 10,000.00
  • 2016 – Support for World Pancreatic Cancer Day in Italy
    € 984.00

Fondazione Nadia Valsecchi Onlus

  • 2016 – Support for the second edition of ‘run for research’
    € 3,000.00

Insieme Contro il Cancro

  • 2016 – Support for a fundraising dinner
    € 7,320.00

LILT Lega Italiana Lotta Tumori

  • 2016 – Support for a training course dedicated to cancer patients related to a relaxation technique aimed at reducing the level of stress, improving quality of life and pain control
    € 5,000.00

My Survival Story

  • 2016 – Speaking engagement on ‘Personal insights from dealing with cancer’ to spread inspiring stories to help coping with cancer. Including transportation, accommodation and meals.
    € 4,517.65

Salute Donna – Associazione per la Prevenzione e lotta ai tumori femminili Onlus

  • 2016 – Support for the organization of events involving citizens, clinicians and political institutions to promote oncology patients’ rights
    € 12,200.00
  • 2016  -Support for a training programme for Salute Donna volunteers
    € 5,000.00
  • 2016 – Support for an event on innovation and sustainability, prevention of tomorrow funded by today’s technologies
    € 6,100.00

TAI Onlus Associazione Thalidomidici Italiani Onlus

  • 2016 – Support for a presentation of an Italian translation of the book ‘Dark Remedy’ by Stephens and Brynner
    € 1,500.00

WALCE Women against Lung cancer in Europe Onlus

  • 2016 – Support for educational materials for lung cancer patients and their caregivers
    € 10,000.00
  • 2016 – Support for the project ‘Cooking with WALCE Onlus’: cooking classes of natural cuisine dedicated to people who are facing cancer as patients or family members
    € 5,000.00

Latvia

No grants were made in 2016.

Lithuania

OHLB “Kraujas”

  • 2016 – Support for annual activities.
    € 6,000.00

Luxembourg

No grants made in 2016.

Macedonia

Macedonian Association for Fight Against Cancer “Borka”

  • 2016 – Attendance at an HTA workshop in Belgrade, including transportation, accommodation and meals.
    € 2,414.54
  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 1,721.52
  • 2016 – Promotional and educational activities, public discussion with institutions and patient representatives.
    € 3,000.00
  • 2016 – Support to attend a public tribune roundtable, including accommodation and flights for two speakers and Borka promo materials.
    € 2,500.00

National Alliance for Rare Diseases of Macedonia (NARDM) LIFE WITH CHALLENGES Bitola

  • 2016 – Attendance at an HTA workshop in Belgrade, including transportation, accommodation and meals.
    € 2,274.54
  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 1,721.52
  • 2016 – Support for a round table on treatment of rare cancers and MDS Day.
    € 3,000.00
  • 2016 – Support to attend a conference with hematologists, public health and relevant institutions, including transportation.
    € 5,000.00

Malta

No grants were made in 2016.

Netherlands

Alvleesklier vereniging NL

  • 2016 – Donation to support AVKV´s work providing information to patients.
    € 5,000.00

Borstkanker vereniging Nederland

  • 2016 – Donation to support BVN´s work to improve patients´ lives.
    € 2,500.00

Lisa Waller Hayes Foundation

  • 2016 – Donation to support LWH´s work for patients suffering from pancreatic cancer.
    € 5,000.00

Psoriasis Vereniging Nederland

  • 2016 – Donation to support PVN activities aimed at improving patients´ lives.
    € 5,000.00

Norway

Blodkreftforeningen

  • 2016 – Attendance for two participants at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 2,104.59
  • 2016 – Advert in magazine.
    € 5,261.47

NORILCO

  • 2016 – Attendance for two participants at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 2,104.59

Poland

ALIVIA – Oncological Foundation of Young People

  • 2016 – Support for two projects: ONKOMAPA and KOLEJKOSKOP.
    € 9,269.72

Carita Foundation – Living with Multiple Myeloma

  • 2016 – Attendance at Celgene Innovation summit, including transportation, accommodation and meals.
    € 2,135.29
  • 2016 – Educational workshops for MM patients and their caregivers.
    € 34,761.47

Dolnoslaskie Stowarzyszenie Pomocy Chorym na Łuszczyce i ŁZS

  • 2016 – Support to update and rebuild PSA and PSO website.
    € 5,793.58

Foundation for Children – Help on Time  (Fundacja Zdążyć z Pomocą)

  • 2016 – Support for medical treatment of a foundation patient.
    € 25,028.26

National Forum for Rare Diseases ORPHAN

  • 2016 – Educational projects (Rare Disease Awareness Day, workshops for parliamentarians, participation in international conference on rare disease, educational meetings for patients).
    € 13,904.59

Ogólnokrajowe Stowarzyszenie Pomocy Chorym na Przewlekłą BIałaczkę Szpikową/National Association for CML Patients Help

  • 2016 – Attendance at Celgene Innovation summit, including transportation, accommodation and meals.
    € 986.98
  • 2016 – Common road initiative: educational program for MM and CML patients (nationwide meetings, educational materials, MM awareness day 2016).
    € 62,570.64
  • 2016 – Grant for regional support groups.
    € 16,222.02

Polish Patients Federation

  • 2016 – Support for a local EUPATI project.
    € 5,793.58

Polska Koalicja Pacjentów Onkologicznych/Polish Cancer Patients Coalition

  • 2016 – Support for the organization an oncological patients forum.
    € 1,158.72

Polskie Stowarzyszenie Pomocy Chorym na Szpiczaka/Polish Association for MM Patients Aid

  • 2016 – Attendance for two participants at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 3,583.50
  • 2016 – Attendance at Celgene Innovation summit, including transportation, accommodation and meals.
    € 1,973.96
  • 2016 – Support for organization and activities for a congress of MM patients.
    € 34,761.47
  • 2016 – Interdisciplinary workshops for MM patients.
    € 23,174.31
  • 2016 – Educational materials on early diagnosis of MM for distribution during a medical conference.
    € 4,634.86

Together in Disease Foundation – Fundacja Razem w Chorobie

  • 2016 – Educational meeting for patients on compliance and drug safety of medicinal products.
    € 8,111.01

Portugal

Associação de Apoio aos Doentes com Leucemia e Linfoma (ADL)

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 1,739.75

Associação Portuguesa Contra a Leucemia – APCL

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 2,341.45

Associação Portuguesa de Leucemias e Linfomas (APLL)

  • 2016 – Educational grant to support travel expenses of APLL representatives to the Multiple Myeloma Scholarship.
    € 1,000.00
  • 2016 – Support for the Oporto Health Event and Portuguese Association of Leukemias and Lymphomas (APLL) meet-up.
    € 2,000.00
  • 2016 – Associação Portuguesa de Leucemias e Linfomas (APLL).
    € 1,739.75
  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 1,739.75

Europacolon Portugal – Associação de Luta Contra o Cancro do Intestino

  • 2016 – Support for activities surrounding the communication of pancreatic cancer initiatives and events.
    € 19,610.00
  • 2016 – Europacolon Portugal Congress in Digestive Oncology.
    € 3,000.00

Liga Portuguesa Contra o Cancro

  • 2016 – Support for Campaign from LPCC entitled “Fumar é uma Droga” – Smoking is a Drug.
    € 5,500.00
  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 1,844.75

Liga Portuguesa Contra o Cancro – Nucleo Regional do Centro

  • 2016 – Support for the National Congress of Cancer Survivors.
    € 1,500.00
  • 2016 – Support for III Psychology-Oncology Iberian Congress
    € 1,000.00

 

Romania

Myeloma Euronet Romania

  • 2016 – Two day training session for nurses and MM patients on nurse patient relationships, new treatments and safe procedures.
    € 5,200.00
  • 2016 – Attendance for two participants at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 2,261.45

Russia

Mercy Bridge

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 1,308.08

National Association of the organizations for patients with rare diseases “Genetics”

  • 2016 – Support for press conferences and round tables.
    € 1,693.58

Russian Patients Association

  • 2016 – Support for the 7th annual Russian congress: Russian Union of Patients Moscow.
    € 7,816.51

Serbia

The Association of Myeloma Patients of Serbia

  • 2016 – Support for Rare Disease Day activitites.
    € 3,000.00
  • 2016 – Support for the organization of meetings and conferences.
    € 3,000.00
  • 2016 – Attendance at an HTA workshop in Belgrade including transportation, accommodation and meals.
    € 707.55
  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 1,800.24

National Organization for Rare Diseases Serbia

  • 2016 – Support for the organization of a round table for Rare Disease day.
    € 3,000.00
  • 2016 – Attendance at an HTA workshop in Belgrade including transportation, accommodation and meals.
    € 707.55
  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 1,805.24

Slovakia

Europacolon Slovensko

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 2,616.00
  • 2016 – Educational seminar for patients.
    € 2,000.00
  • 2016 – Press conference dedicated to World Pancreatic Cancer Day 2016 and Europacolon activities.
    € 15,000.00

Slovak Myeloma Society (SMyS)

  • 2016 – Support for “School of Myeloma for Patients 2016”.
    € 4,000.00

Spoločnosť psoriatikov a atopikov SR

  • 2016 – Printing of bulleting and brochures for patients and support for “Deň kože, deň dotykov” (Day skin, day touch).
    € 3,000.00

Združenie pacientov s hematologickými malignitami

  • 2016 – Support for the creation of a database of clinical trials in Europe (accessible on www.hematologickypacient.sk).
    € 4,800.00
  • 2016 – Support to raise awareness of hematological malignancies and treatment options, providing legal and medical guidance and improving treatment adherence.
    € 16,555.00

Slovenia

Association of patients with blood diseases

  • 2016 – Support for rare disease day booklet and activities.
    € 6,000.00
  • 2016 – Co-financing for a brochure for rare disease day and participation of EBMT.
    € 1,500.00

Društvo revmatikov Slovenije

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 1,797.68

Psoriasis Association

  • 2016 – Attendance at an HTA workshop in Belgrade including transportation, accommodation and meals.
    € 903.43
  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 1,782.68

Slovenian Association of Lymphoma and Leukaemia Patients

  • 2016 – Support for Lymphoma and Leukaemia Day in Maribor and Novo Mesto, including brochures, a charity concert, and counseling services.
    € 4,000.00
  • 2016 – Support for Lymphoma and Leukaemia Info Day, a roundtable for world lymphoma awareness, and a brochure.
    € 3,000.00
  • 2016 – Attendance at an HTA workshop in Belgrade including transportation, accommodation and meals.
    € 903.43
  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 1,732.68

Slovenian Lymphoma Patient Association

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 1,732.68

Spain

Sweden

Blodcancerförbundet

  • 2016 – Updating and printing of diagnosis brochures.
    € 2,369.54
  • 2016 – Advertising in member magazine during 2016 issues.
    € 6,462.39
  • 2016 – Political round table for international lymphoma day.
    € 2,832.68
  • 2016 – Patient and family day for MDS and AML.
    € 3,231.19
  • 2016 – Multiple myeloma patient and family day.
    € 15,078.90
  • 2016 – Sponsorship for workshop on how to politically engage 2016.
    € 3,904.36
  • 2016 – Patient and family meeting in North of Sweden on myeloma and stem cell transplant.
    € 1,510.58

Cancerföreningen PALEMA

  • 2016 – Printing of patient information material.
    € 767.30
  • 2016 – Sponsorship for patient and family meeting on World Pancreatic Cancer Day 2016.
    € 1,645.11
  • 2016 – Sponsorship of reprinting for pancreatic cancer patient folder.
    € 2,552.64

Nätverket mot cancer

  • 2016 – Support for World Cancer Day seminar on February 4th 2016.
    € 3,231.19
  • 2016 – Support for political activities during Almedalen.
    € 4,618.45

Reumatikerförbundet

  • 2016 – Presentation on psoriatic arthritis, including speaker payment and advertising.
    € 1,831.01

Sällsynta diagnoser

  • 2016 – Support for Rare Disease Day 2016.
    € 2,800.37

Ung Cancer

  • 2016 – Lecture at Celgene nurse meeting in Lund.
    € 646.24

Switzerland

ho/noho – Schweizerische Patientenorganisation für Lymphombetroffene und Angehörige

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 1,963.88
  • 2016 – Sponsorship of a patient booklet.
    € 10,842.36
  • 2016 – Patient Symposium on WLAD.
    € 13,900.46

MKgS – Myelom Kontaktgruppe Schweiz

  • 2016 – MKgS – Myelom Kontaktgruppe Schweiz.
    € 1,963.70
  • 2016 – Support for patient awareness event.
    € 7,413.58

Rheumaliga Schweiz

  • 2016 – Sponsoring for basic communication channels (website and members journal).
    € 4,633.49
  • 2016 – Support for online PsA Test for patients.
    € 7,737.92
  • 2016 – Representation of Rheumaliga at the Celgene Innovation summit including transportation, accommodation and meals.
    € 319.57

Schweizerische Polyarthritiker-Vereinigung

  • 2016 – Support for disease awareness activities.
    € 4,633.49

Schweizerische Psoriasis & Vitiligo Gesellschaft SPVG

  • 2016 – Support for disease awareness campaign.
    € 15,383.17
  • 2016 – Support for disease awareness campaign.
    € 23,167.43
  • 2016 – Schweizerische Psoriasis & Vitiligo Gesellschaft SPVG.
    € 1,853.39

SKS – Stiftung zur Förderung der Knochenmarkstransplantation Schweiz

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 1,571.05
  • 2016 – Support for patient day.
    € 7,413.58

SSP – Schweizer Selbsthilfeorganisation Pankreaserkrankungen

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 2,012.28

Turkey

Leukemia Lymphoma Myeloma Patients and Research & Education Association

  • 2016 – Donation to support association’s ‘4th Leukemia Lymphoma Myeloma Patients Congress’.
    € 7,768.35

United Kingdom