Celgene Cooperation With European Patient Organizations

Across Europe Celgene collaborates with patient organizations through support and collaboration on initiatives that make a positive impact on our patients, our communities and our world, today and for years to come. We are committed to improving the lives of patients and focus our support in areas where we can make the greatest impact.

Celgene Interaction With European Patient Organizations

According to European regulations Celgene requires European-based patient organizations to subscribe to communications on behalf of Celgene and its third parties. To be compliant with these regulations, Celgene has developed a registry of patient organizations based in Europe where they can provide consent for Celgene to keep in touch, and in what capacity.

Celgene Support for European Patient Organization

Across Europe Celgene provides support to organizations and initiatives that make a positive impact on our patients, our communities and our world, today and for years to come. We are committed to improving the lives of patients and focus our support in areas where we can make the greatest impact.

Support for patient organizations in Europe is the responsibility of the local Celgene office in the country in which the patient organization is based and is dependent on local laws and regulations. If you are a European based patient organization and wish to apply for support please contact your local Celgene office for more information. Patient organizations who provide services in more than one European country can apply for support to the Celgene EMEA regional office.

Belgium (2020)

European Cancer Patient Coalition

  • Fees for professional services
    € 720

 

Cyprus (2020)

Thalassemia International Federation

  • Fees for professional services
    € 720.00
  • Fees for professional services
    € 480.00
  • Fees for professional services
    € 300.00

Thalassemia International Federation

  • Fees for professional services
    € 720.00
  • Fees for professional services
    € 480.00
  • Fees for professional services
    € 300.00

 

Finland (2020)

Suomen Syöpäpotilaat

  • Support for Patient Organisation Information Booklet for MDS Patients
    € 3,000

Sairaalaklovnit

  • Support for Hospital Clown activities in Children’s Wards
    € 6,000

 

France (2020)

AF3M – Association Française des Malades du Myélome Multiple

  • Fees for professional services
    € 1,120.00
  • Fees for professional services
    € 480.00
  • Out of pocket/ expenses
    € 675.00
  • Grants
    € 60,000

France Psoriasis

  • Fees for professional services
    € 1,520.00

France Lymphome Espoir

  • Grants
    € 12,000.00
  • Grants
    € 8,000.00

CCM – Connaitre & Combattre les Myélodysplasies

  • Fees for professional services
    € 920.00
  • Out of pocket/ expenses
    € 436.00
  • Fees for professional services
    € 507.00
  • Out of pocket/ expenses
    € 120.00

TRANS-FORME

  • Grants
    € 14,000.00
  • Sponsorship of Meetings
    € 9,000.00

Association Laurette Fugain

  • Grants
    € 10,000.00

Ligue Française contre la Sclérose en Plaques

  • Grants
    € 10,000.00
  • Grants
    € 20,000.00

Fédération Leucémie Espoir

  • Grants
    € 4,000.00

 

Germany (2020)

Leukaemiehilfe RHEIN-MAIN e.V

  • Fees for professional services
    € 600.00
  • Fees for professional services
    € 400.00

 

Hungary (2020)

Magyar Onkohematológiai Betegekért Alapítány

  • Support for the Myeloma Information Day
    9,428 ft (HUF)

 

Ireland (2020)

Italy (2021)

AIL – Associazione Italiana contro le Leucemie-linfomi e mieloma ONLUS

  • Support to association in organizing the National Mieloma Day Press Conference
    € 5,000
  • Support to association in organizing Fitwalking for AIL awareness raising and fundraising event
    € 5,000
  • Contribution to Home Care project that allows AIL to assist haematological patients at home
    € 22,500
  • Contribution to AIL and AIL Provincial Sections’ Easter Campaign to donated Easter Eggs to hematological patients and to healthcare personnel
    € 10,000
  • Support for the national awareness campaign “CART Destinazione Futuro 2021” promoted by AIL (Indirect support)
    € 33,500
  • Support to association in organizin 10 webinars for patients, telephone and online counseling service, training project for committed patients on patient advocacy issues
    € 30,000
  • Support for the national awareness campaign “CART Destinazione Futuro 2022” promoted by AIL (Indirect support)
    € 53,000

AIPAMM – Associazione Italiana Pazienti con Malattie Mieloproliferative

  • Support to association to realize Educational material for patients with myelofibrosis
    € 20,400
  • Support for the conference “The Seasons of Life and Illness” organized by AIPAMM and dedicated to patients
    € 8,000

AIPaSiM – Associazione Italiana Pazienti con Sindrome Mielodisplastica

  • Support association 2021 projects
    € 15,000
  • Support for the national awareness campaign “Magnifico Donare” promoted by UNITED and AIPaSiM (Indirect support)
    € 21,400

AISM – Associazione italiana Sclerosi Multipla

  • Contribution to the “Bentonata Gardensia” fundraising initiative during the national multiple sclerosis week equivalent to the purchase of 660 virtual gardensia
    € 10,000
  • Support for the 13 edition of “Convegno Giovani” event aimed at young people suffering from MS (Indirect support)
    € 25,000
  • Support for the national awareness campaign “L’apparenza Inganna” on Multiple sclerosis (Indirect Support)
    € 150,000

“ASSOCIAZIONE ITALIANA CONTRO LE LEUCEMIE-LINFOMI E MIELOMA – SEZIONE MILANO E PROVINCIA”

  • Support for “AIL Welcomes: a home for those in care” project to offer free accommodation and overnight stays to patients forced to commute to health care
    € 10,000

ASSOCIAZIONE per la LOTTA alla TALASSEMIA – Rino Vullo – ODV

  • Contribution to Alt Ferrara 2021 Planning and conference on 25-26 September 2021
    € 10,000

Associazione per la ricerca Piera Cutino Onlus

  • Support for the XI edition of the “THALASSEMIA DAY”
    € 15,000
  • Contribution to the association to donate to the bodies that deal with donations and / or blood transfusions on the national territory Christmas solidarity products – panettone and pandoro
    € 20,000

Fondazione Italiana “Leonardo Giambrone” per la Guarigione dalla Talassemia e Drepanocitosi

  • Contribution for 2021 association activities: Blood collection program and Social program
    € 10,000

Fondazione Renata Quattropani Onlus

  • Support the project “Doctors. Patients. Relatives. (MPP): Medical Coaching beyond the COVID-19 emergency in support of patients chronic onco-haematological ” to create creation of 6 new paths of Medical Coaching
    € 15,000

LA LAMPADA DI ALADINO ONLUS

  • Contribution to the distribution in national oncology/hematology a free version of the book “Ma dal cancro si guarisce?”
    € 10,000
  • Support the campaign “Articolo 17 – I pazienti hanno diritto di essere attivi” promoted by La Lampada di Aladino Onlus (Indirect support)
    € 10,000

ROMAIL “Vanessa Verdecchia” ONLUS – Associazione Italiana contro le Leucemie-linfomi e mieloma, Sezione di Roma e Provincia

  • Contibution to ROMAIL “Vanessa Verdecchia” ONLUS Easter Campaign to donated Easter Eggs to Roman Hospitals healthcare personnel
    € 10,000
  • Support a dedicated call center for patients “PRONTO ASCOLTO Diritti & Tutele”
    € 10,000

UNIAMO Federazione Italiana Malattie Rare Onlus

  • Support AWARENESS RAISING CAMPAIGN ON THE OCCASION OF THE XI EDITION OF THE WORLD DAY OF RARE DISEASES 2021
    € 5,000
  • Support multistakeholder tables – focus on orphan drugs and advanced therapies
    € 5,000

UNITED Onlus – Federazione Italiana Thalassemia, Drepanocitosi e Anemie Rare

  • Contribution to UNITED 2021 activities
    € 27,000
  • Support for the national awareness campaign “Magnifico Donare” promoted by UNITED and AIPaSiM (Indirect support)
    € 21,400

Netherlands (2020)

Myeloma Patients Europe

  • Fees for professional services
    € 525.00

 

Norway (2020)

Blodkreftforeningen

  • Supported special edition of membership magazine highlighting R&D, with placement of BMS ad
    50,000 NOK
  • AML disease awareness semiar
    35,000 NOK

 

Spain (2020)

Sweden (2020)

Blodcancerförbundet

  • Fees for professional services
    5,880 kr (SEK)

 

United Kingdom (2020)