Celgene Cooperation With European Patient Organizations

Across Europe Celgene collaborates with patient organizations through support and collaboration on initiatives that make a positive impact on our patients, our communities and our world, today and for years to come. We are committed to improving the lives of patients and focus our support in areas where we can make the greatest impact.

Celgene Interaction With European Patient Organizations

According to European regulations Celgene requires European-based patient organizations to subscribe to communications on behalf of Celgene and its third parties. To be compliant with these regulations, Celgene has developed a registry of patient organizations based in Europe where they can provide consent for Celgene to keep in touch, and in what capacity.

Celgene Support for European Patient Organization

Across Europe Celgene provides support to organizations and initiatives that make a positive impact on our patients, our communities and our world, today and for years to come. We are committed to improving the lives of patients and focus our support in areas where we can make the greatest impact.

Support for patient organizations in Europe is the responsibility of the local Celgene office in the country in which the patient organization is based and is dependent on local laws and regulations. If you are a European based patient organization and wish to apply for support please contact your local Celgene office for more information. Patient organizations who provide services in more than one European country can apply for support to the Celgene EMEA regional office.

The lists below show all the support given by Celgene for European patient organizations or initiatives in Europe in 2020.

Belgium

European Cancer Patient Coalition

  • Fees for professional services
    € 720

 

Cyprus

Thalassemia International Federation

  • Fees for professional services
    € 720.00
  • Fees for professional services
    € 480.00
  • Fees for professional services
    € 300.00

Thalassemia International Federation

  • Fees for professional services
    € 720.00
  • Fees for professional services
    € 480.00
  • Fees for professional services
    € 300.00

 

Finland

Suomen Syöpäpotilaat

  • Support for Patient Organisation Information Booklet for MDS Patients
    € 3,000

Sairaalaklovnit

  • Support for Hospital Clown activities in Children’s Wards
    € 6,000

 

France

AF3M – Association Française des Malades du Myélome Multiple

  • Fees for professional services
    € 1,120.00
  • Fees for professional services
    € 480.00
  • Out of pocket/ expenses
    € 675.00
  • Grants
    € 60,000

France Psoriasis

  • Fees for professional services
    € 1,520.00

France Lymphome Espoir

  • Grants
    € 12,000.00
  • Grants
    € 8,000.00

CCM – Connaitre & Combattre les Myélodysplasies

  • Fees for professional services
    € 920.00
  • Out of pocket/ expenses
    € 436.00
  • Fees for professional services
    € 507.00
  • Out of pocket/ expenses
    € 120.00

TRANS-FORME

  • Grants
    € 14,000.00
  • Sponsorship of Meetings
    € 9,000.00

Association Laurette Fugain

  • Grants
    € 10,000.00

Ligue Française contre la Sclérose en Plaques

  • Grants
    € 10,000.00
  • Grants
    € 20,000.00

Fédération Leucémie Espoir

  • Grants
    € 4,000.00

 

Germany

Leukaemiehilfe RHEIN-MAIN e.V

  • Fees for professional services
    € 600.00
  • Fees for professional services
    € 400.00

 

Hungary

Magyar Onkohematológiai Betegekért Alapítány

  • Support for the Myeloma Information Day
    9,428 ft (HUF)

 

Ireland

Italy

AIPaSiM – Associazione Italiana Pazienti con Sindrome Mielodisplastica

  • Support association’s physicians-patients meetings throughout the nation (Indirect support)
    € 15,000
  • Support for the national awareness campaign “Magnifico Donare” promoted by UNITED and AIPaSiM (Indirect support)
    € 112,000

UNITED Onlus – Federazione Italiana Thalassemia, Drepanocitosi e Anemie Rare

  • Support association in realizing a social communication disease awareness campaign (Indirect support)
    € 12,000
  • Support for the national awareness campaign “Magnifico Donare” promoted by UNITED and AIPaSiM (Indirect support)
    € 112,000

AIL – Associazione Italiana contro le Leucemie-linfomi e mieloma ONLUS

  • Support association in organizing the National Mieloma Day Press Conference
    € 5,000
  • Support for the national awareness campaign “Mieloma ti sfido: io non mi lascio cadere” promoted by AIL and Lampada di Aladino (Indirect support)
    € 74,641
  • Support for homecare service to fragile and not self sufficient haematological patients
    € 50,000
  • Support association’s campaign “CAMPAGNA #IOSONOARISCHIO” for 800 Easter Eggs donated to pediatric haematological Hospitals
    € 10,000
  • Support the association in organizing a charitable dinner and a virtual Fitwalkin
    € 15,000

LA LAMPADA DI ALADINO ONLUS

  • Support association 2021 calendar (Indirect support)
    € 10,000
  • Support association’s activities for Covid’s patients assistance and rehabilitation
    € 7,500
  • Support association in purchasing 300 masks to be distributed to patients in the Rho hospital
    € 1,800
  • Support for the national awareness campaign “Mieloma ti sfido: io non mi lascio cadere” promoted by AIL and Lampada di aladino (Indirect support)
    € 74,641

EUROPA DONNA Italia

  • Support the “Laudato Medico 2020” ceremony
    € 15,000

AISM – Associazione italiana Sclerosi Multipla

  • Support for the 12th edition of “Convegno Giovani” event aimed at young people suffering from MS (Indirect support)
    € 15,000
  • Support for the creation of 20 informative infographics on the MS symptoms (Indirect support)
    € 20,000

UNA MANO ALLA VITA ONLUS

  • Loan for use of 8 IPad devices for COVID-19 intensive care patients at the Niguarda Hospital
    Non-financial support

Fondazione Italiana “Leonardo Giambrone” per la Guarigione dalla Talassemia e Drepanocitosi

  • Support for empowerment laboratories aimed at patients with hemoglobinopathies and their caregivers
    € 8,000

ROMAIL “Vanessa Verdecchia” ONLUS – Associazione Italiana contro le Leucemie-linfomi e mieloma, Sezione di Roma e Provincia

  • Support homecare for haematological patients at Umberto I Hospital and San Giovanni Addolorata Hospital in Rome.
    € 30,000

UNIAMO Federazione Italiana Malattie Rare Onlus

AIPAMM – Associazione Italiana Pazienti con Malattie Mieloproliferative

Netherlands

Myeloma Patients Europe

  • Fees for professional services
    € 525.00

 

Norway

Blodkreftforeningen

  • Supported special edition of membership magazine highlighting R&D, with placement of BMS ad
    50,000 NOK
  • AML disease awareness semiar
    35,000 NOK

 

Spain

Sweden

Blodcancerförbundet

  • Fees for professional services
    5,880 kr (SEK)

 

United Kingdom