Patient Group Support – Pan-European

International Patient Organizations with Activities in Europe:

Active Citizenship Network/ Cittadinanzattiva Onlus

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 1,609.36

EuropaColon

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals.
    € 1,729.91

European Cancer Patients Coalition

  • 2016 – Support for ECPC pancreatic cancer activities and support for the ECPC AGM
    € 25,000.00

European Patients Forum (EPF)

  • 2016 – Grant to support EPF’s Capacity Building Programme
    € 30,000.00

EURODIS (European Organization for Rare Diseases)

  • 2016 – EURORDIS Round Table of Companies (ERTC) membership fees
    € 25,000.00
  • 2016 – EURORDIS Awards and Black Pearl Evening and the Multi-stakeholder Symposium to improve access to rare disease therapies on 24th and 25th February 2016
    € 30,000.00
  • 2016 – EURORDIS’ International Initiatives including RareConnect, Rare Barometer and Rare Diseases International
    € 30,000.00
  • 2016 – The development of national and European networking of “The Rareconnect online Rare Disease communities”
    € 10,000.00
  • 2016 – Contribution for the project “RareConnect Online Rare disease communities”
    € 50,000.00
  • 2016 – Speaking engagement during the Celgene Innovation summit, including transportation, accommodation and meals
    € 1,004.31

IFPA International Federation of Psoriasis Associations

  • 2016 – 2016 Silver Sponsorship
    € 65,000.00
  • 2016 – IFPA Solidarity Fund Donation
    € 10,000.00

International Myeloma Foundation

  • 2016 – Attendance at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 3,256.51
  • 2016 – Support for 15 Patient and Family Seminars in 17 European countries
    € 166,284.40
  • 2016 – Support for Myeloma Minute EU Versions in Spanish, German, French and Italian
    € 53,211.01
  • 2016 – IMF Publications and Translations for the “Patient handbook” and “Understanding Series”
    € 32,798.17

Lymphoma Coalition

  • 2016 – Support for the European information programme, including analysis of information on lymphomas and CLL from LC database and global patient survey
    € 20,000.00
  • 2016 – Grant to support World Lymphoma Awareness Day (WLAD) in Europe
    € 30,000.00

Myeloma Patients Europe

  • 2016 – Support for educational and outreach programmes and projects to benefit the Myeloma community
    € 100,000.00
  • 2016 – Attendance for two participants at Partners for Progress: Patient group workshop including transportation, accommodation and meals
    € 2,411.29
  • 2016 – Representation of MPE to host at the Celgene Innovation summit, including transportation, accommodation and meals
    € 1,163.70

Thalassaemia International Federation

  • 2016 – Donation to support the Educational Platform for Patient Education in 2016
    € 18,348.62
  • 2016 – Support for the Development of Telemedicine/Tele-Expertise Services in 2016
    € 9,174.31
  • 2016 – Support of 2nd Pan Middle East Conference
    € 27,522.94
  • 2016 – Support of HbE Beta Thalassemia Conference
    € 9,174.31
  • 2016 – Support for Educational Platform for Physician Education in 2016
    € 18,348.62