Celgene Support for European Patient Organizations

Across Europe Celgene provides support to organizations and initiatives that make a positive impact on our patients, our communities and our world, today and for years to come. We are committed to improving the lives of patients and focus our support in areas where we can make the greatest impact.

Support for patient organizations in Europe is the responsibility of the local Celgene office in the country in which the patient organization is based and is dependent on local laws and regulations. If you are a European based patient organization and wish to apply for support please contact your local Celgene office for more information. Patient organizations who provide services in more than one European country can apply for support to the Celgene EMEA regional office.

The lists below show all the support given by Celgene for European patient organizations or initiatives in Europe in 2017.

Pan-European

Support for Pan-European patient organizations and International Patient Organizations with offices or activities in Europe:

European Cancer Patient Coalition – ECPC

  • Grant to support 2017 activities, including World Pancreatic Cancer Day activities and the ECPC AGM.
    € 25,000.00
  • Grant to support ECPC’s nutrition and physical activity programme.
    € 10,000.00

European Federation of Crohn’s and Ulcerative Colitis Associations – EFCCA

  • Attendance at Celgene ChangeMakers Steering committee meeting, including travel, accommodation and meals.
    € 932.10
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,142.68
  • Corporate Membership Fees.
    € 8,500.00

European MS Platform

  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,315.66

European Patients’ Forum – EPF

  • Grant to support the EPF Capacity Building Programme.
    € 15,000.00

European Organization for Rare Diseases – EURORDIS

  • Grant to support 2017 activities.
    € 100,000.00

International Federation of Psoriasis Associations – IFPA

  • Attendance at Celgene ChangeMakers Steering committee meeting, including travel, accommodation and meals.
    € 761.47
  • 2017 IFPA corporate membership fees.
    € 65,000.00
  • Global psoriasis coalition membership fees.
    € 35,000.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,413.08

International Alliance of Dermatology Patient Organizations – IADPO

  • Bronze sponsorship of the Global Skin Conference.
    € 20,000.00
  • Consultation fees for participation at an advisory board for the Humagine project Contracted service.
    € 1,676.00

International Myeloma Foundation – IMF

  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 789.90
  • Support for European and International activities.
    € 210,285.00
  • Support for the Global Myeloma Action Network.
    € 142,059.20

Lymphoma Coalition

  • Grant for 2017 activities.
    € 25,000.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,675.36

Myeloma Patients Europe – MPE

  • Attendance at Celgene ChangeMakers Steering committee meeting, including travel, accommodation and meals.
    € 800.33
  • Participation of two delegates at CAR T advisory board, including honoraria, transportation, accommodation, and meals.
    € 2,622.19
  • Grant to support 2017 activities.
    € 100,000.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,030.43
  • Consulting fees for input to Celgene clinical trial programme.
    € 150.00

Thalassaemia International Federation – TIF

  • Attendance at Celgene ChangeMakers Summit for 2 representatives, including transportation, accommodation and meals.
    € 2,891.78
  • Sponsorship to attend EHA Congress.
    € 2,000.00
  • Participation of two delegates at a Beta-Thalassaemia advisory board, including honoraria, transfers, accommodation and sustenance.
    € 1,065.97
  • Support for laboratory preceptorship in Asia.
    € 23,365.00
  • Support for the TIF International Conference.
    € 28,038.00
  • Support for Educational Platform in Asia.
    € 4,673.00
  • Support for Asian Networking Meeting.
    € 23,365.00
  • Translation for Patient Education Platform.
    € 14,019.00

Austria

Forum Psoriasis-Selbsthilfegruppe für Menschen mit Psoriasis

  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,200.54

Multiples Myelom Selbsthilfe Österreich

  • Support to run patient meetings and symposia throughout the year.
    € 10,000.00

Myelom- und Lymphomhilfe Österreich

  • Support to run patient meetings and symposia throughout the year.
    € 10,000.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,200.54

Österreichische Vereinigung Morbus Bechterew

  • Support for Ankylosing Spondylitis Day on 18.01.2017.
    € 1,300.00

PsO Austria – Verein und Selbsthilfegruppe der PsoriatikerInnen Österreichs

  • Support for the PSO Austria Journal in 2016 and 2017.
    € 3,400.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,200.54

Belgium

CMP Vlaanderen

  • Grant to support 2017 activities.
    € 4,000.00
  • Grant for a patient questionnaire on Multiple Myeloma and Waldenström conducted by patient organizations CMP Vlaanderen and Mymu.
    € 8,088.00
  • Attendance at Celgene ChangeMakers Summit for 2 representatives, including transportation, accommodation and meals.
    € 2319.28

GIPSO asbl

  • Attendance at Celgene ChangeMakers Summit for 2 representatives, including transportation, accommodation and meals.
    € 2,319.28

MyMu

  • Grant to support 2017 activities.
    € 4,000.00
  • Grant for a patient questionnaire on Multiple Myeloma and Waldenström conducted by patient organizations CMP Vlaanderen and Mymu.
    € 8,088.00
  • Attendance at Celgene ChangeMakers Summit for 2 representatives, including transportation, accommodation and meals.
    € 2,319.28

Psoriasis Liga Vlaanderen

  • Grant to support 2017 activities.
    € 5,000.00

Psoriasis-Contact

  • Attendance at Celgene ChangeMakers Summit for 2 representatives, including transportation, accommodation and meals.
    € 2,319.28

Wildgroei VZW

  • Consulting fees for input to Celgene’s clinical trial programme.
    € 350.00
  • Participation at CAR T advisory board, including honoraria, transportation, accommodation, and meals.
    € 1,639.62

Bosnia

Mijelom u BIH

  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,253.06
  • Financial support for patient educational event for Multiple Myeloma, MDS and other rare blood diseases in Bosnia and Herzegovina.
    € 3,000.00

Bulgaria

Thalassaemics’ Association in Bulgaria

  • Participation at Beta-Thalassaemia advisory board in Thessaloniki, including honoraria, travel, accommodation, and sustenance.
    € 607.12

Croatia

Croatian society leukemia and lymphoma

  • Support for 3 disease awareness and patient support campaigns.
    € 2,652.39

Myeloma CRO

  • Support for the education of key organization members through attendance at national, regional and international patient meetings, congresses and summits, inclusive of travel, accommodation and sustenance.
    € 3,315.49
  • Support for multiple projects in 2017.
    € 5,000.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 999.90

Croatian Psoriasis Association

  • Grant to support reprinting of brochures and updating official webpage.
    € 4,000.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,470.47

Croatian Alliance for rare diseases

  • Financial support for Rare Disease Day 2017.
    € 3,000.00

Remisija

  • Support for multiple projects in 2017.
    € 2,000.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,255.25

Czech Republic

Mnohočetný myelom klub pacientů

  • Support for 2017 activities of Myeloma patient groups.
    € 11,070.00
  • Support for educational activities for Myeloma patients.
    € 2,398.50

Nadační fond na podporu zaměstnávání osob se zdravotním postižením (NF OZP)

  • Support of workshop at US Embassy: “Benefits of innovation in medical care”.
    € 3,505.50

OnkoMajak

  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,143.44
  • Support for 2017 activities for pancreatic cancer patient groups via new Internet pages and facebook page.
    € 1,845.00
  • Grant to support campaign of pancreatic carcinoma patient stories.
    € 1,845.00

Spolek Diagnóza leukemie, z.s

  • Educational grant for participation at the 14th MDS symposium in Valencia.
    € 1,845.00
  • Support for 2017 activities of MDS patient groups.
    € 17,158.50
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,202.48

Spolek psoriatiků a atopických ekzematiků (SPAE)

  • Grant to support activities for patients with psoriasis managed by psoriatic patient group (PSA).
    € 19,557.00

Denmark

Dansk Myelomatose forening

  • Sponsorship of support person meeting and conference in March.
    € 12,816.10
  • Support for network meeting and conference.
    € 12,816.10

LyLe

  • Sponsorship of regional patient meetings throughout 2017 and theme weekend in September 2017.
    € 12,749.00
  • Support for network meeting and conference.
    € 12,749.00
  • Printing of the MDS Magazine.
    € 671.00
  • Printing of an introduction brochure.
    € 308.66
  • Grant to support the development of a new webpage.
    € 2,684.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 2,013.00

Pancreasnetvaerket i Danmark

  • Support for a patient seminar.
    € 402.60

Psoriasisforeningen

  • Sponsor link-out on app: PsoMentor.
    € 2,013.80

Finland

Psoriasisliitto

  • Support for World Psoriasis Day 2017.
    € 2,200.00
  • Support for Psori Line in 2018.
    € 4,000.00
  • Membership fees for psoriasis association in 2017.
    € 1,700.00

Suomen Syöpäpotilaat Finish Cancer Patients

  • Support for a national patient event in October and a Myeloid patient support leaflet.
    € 4,000.00

France

AF3M

  • Contracted speaking engagement for 3 workshops during an annual “Ateliers Celgene” meeting with French HCPs including honoraria, transportation and meals.
    € 2,387.00
  • Attendance at two boards 8th March and 4th October in order to identify educational needs of multiple myeloma patients and to define relevant tools.
    € 2,700.00
  • Grant to support National Multiple Myeloma Day (Oct 17) in 25 French towns.
    € 60,000.00
  • Grant to support actions of the community approach “CancerAdom” which identifies solutions for ambulatory care.
    € 10,000.00
  • Contracted service for consulting “Humagine” advisory board: project to explore, understand and improve experience of chronic disease patients, including transportation and meals.
    € 1,991.00

Association Connaitre et Combattre les Myélodysplasies

  • Grant to support 6th national day of information for SMD patients and their relatives in 20 towns of France via payment of the service provider for posters, leaflets, video and website of the this national day.
    € 30,000.00

Association de Soutien et d’Information à la Leucémie Lymphoïde Chronique et la maladie de Waldenström (SILLC)

  • Contracted service for the review of a draft Informed Consent Form template for clinical studies.
    € 1,500.00

France Lymphome Espoir

  • Contracted service for input to Celgene clinical trial programm.
    € 480.00
  • Contracted speaking engagement for 3 workshops during an annual “Ateliers Celgene” meeting with French HCPs including honoraria, transportation and meals.
    € 1,680.00
  • Grant to support World Lymphoma Day with 21 conferences in various locations in France.
    € 15,000.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,219.00
  • Participation at CAR T advisory board, including honoraria, transportation, accommodation, and meals.
    € 1,735.82

France Psoriasis

  • Contracted service for multiple reviews of a draft Informed Consent Form template for clinical studies.
    € 2,500.00
  • Attendance for two participants at EADV Congress in Geneva, including transportation, accommodation and meals.
    € 1,950.00
  • Attendance at a board meeting dedicated to identifying solutions to improve recruitment and retention of patients in clinical trials.
    € 810.00
  • Attendance at a board meeting dedicated to identifying solutions to improve recruitment and retention of patients in clinical trials.
    € 933.00
  • Grant to support World Psoriasis Day.
    € 35,000.00
  • Contracted service to help designing a digital information campaign about psoriasis.
    € 3,000.00
  • Contracted service for consulting “Humagine” advisory board: project to explore, understand and improve experience of chronic disease patients.
    € 1,280.00
  • Transportation for a meeting about “PsoPro” project, national survey of the impact of psoriasis on patients’ lives.
    € 201.00

Ligue contre le cancer

  • Payment of agency MCD promotion to support the Ligue Contre le Cancer “Gala de l’espoir” (Hope Gala).
    € 15,000.00

Germany

Greece

EOTHA – Greek Thalassaemia Federation

  • Attendance at Celgene ChangeMakers Summit, including transfers, accommodation and meals.
    € 789.90
  • One day educational symposium: Thalassaemia, at the dawn of new era.
    € 2,500.00
  • Participation at Beta-Thalassaemia advisory-board, including honoraria and sustenance.
    € 452

Epidermia

  • Attendance at Celgene ChangeMakers Summit for 2 representatives, including transfers, accommodation and meals.
    € 1,579.80

ESTHA Greek Thalassemia Association

  • Educational meeting on Cardiac impact of Thalassaemia.
    € 3,000.00
  • Attendance at Celgene ChangeMakers Summit, including transfers, accommodation and meals.
    € 789.90
  • Participation at Beta-Thalassaemia advisory-board, including honoraria and sustenance.
    € 452.00

K.E.FI of Athens – Association of Cancer Patients

  • Attendance at Celgene ChangeMakers Summit for 2 representatives, including transfers, accommodation and meals.
    € 1,579.80
  • Support from ImpactPanc award program.
    € 18,692.00

PanHellenic Association for the protection Thalassemia patients: PEPPAMA

  • Support for educational day on Thalassemia.
    € 3,500.00

PASPAMA Panhellenic Thalassaemia Patients Association

  • Participation at Beta-Thalassaemia advisory-board, including honoraria, travel, accommodation and sustenance.
    € 793.87

Hungary

MOHA – Foundation for Hungarian Oncohaematological Patients

  • Grant for 2017 activities.
    € 9,920.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,146.78

Ireland

Italy

A.D.I.PSO. – Associazione per la Difesa degli Psoriasici Onlus

  • Support for an event organized for World Psoriasis Day 2017.
    € 10,000.00
  • Support for a national meeting with physicians that took part in the Open Day organized for World Psoriasis Day.
    € 20,000.00
  • Cost for the participation in a project focused on psoriatic arthritis ‘light on contest’.
    € 1,327.80

Accademia dei pazienti Onlus

  • Cost for the participation in a project focused on psoriatic arthritis ‘light on contest’.
    € 513.00

AIL – Associazione Italiana contro le Leucemie-linfomi e mieloma ONLUS

  • Consulting fees for input to Celgene clinical trial programme.
    € 1,000.00
  • Support for a press conference organized by AIL for the National Hematological Day.
    € 25,000.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,149.89
  • Participation at CAR T advisory board, including honoraria, transportation, accommodation, and meals.
    € 1,736.00

AIL Italian Association against Leukemia, Lymphoma and Multiple Myeloma Onlus, Milano

  • Support for the project ‘AIL Accoglie’ focused on hematological patient support during treatment period.
    € 10,000.00

AIL Italian Association against Leukemia, Lymphoma and Multiple Mieloma Onlus, Caserta

  • Support for the project ‘Insime a te per condividere’.
    € 9,000.00

AIL Italian Association against Leukemia, Lymphoma, and Multiple Mieloma Onlus, Alessandria

  • Support for a project for the expansion of the ‘pneumatic system’ to reduce waiting times for patients for organic samples.
    € 10,000.00

AIL-Associazione Italiana contro le Leucemie, Linfomi e Mieloma, Reggio Calabria

  • Support for the project ‘Homecare Assistance to hematological patients’.
    € 15,000.00

AIPaSiM Associazione Italiana Pazienti con Sindrome Mielodisplastica

  • Support for MDS Awareness Day in Italy.
    € 29,280.00

AISCUP – Associazione Italiana per lo Studio e la Cura del Paziente oncologico ONLUS

  • Support for a therapeutic education program aimed at patients at risk or suffering from oncological lymphedema.
    € 10,000.00

ANMAR Associazione Nazionale Malati Reumatici

  • Support for an event organized for the World Arthritis Day.
    € 20,000.00
  • Attendance at Celgene ChangeMakers Summit for 1 representative, including transportation, accommodation and meals.
    € 2,020.95
  • Cost for participation at the project focused on psoriatic arthritis ‘light on contest’.
    € 916.97

APMAR Associazione Persone con Malattie Reumatologiche e Rare

  • Attendance at Celgene ChangeMakers Summit for 2 representatives, including transportation, accommodation and meals.
    € 2,414.80
  • Support for the events organized for the World Rheumatic Day.
    € 10,000.00
  • Support for the implementation of the project ‘Numero Verde’.
    € 10,000.00
  • Cost for the participation in a project focused on psoriatic arthritis ‘light on contest’.
    € 4,971.94

Associazione FAEL Familiari ed Amici Emopatici conto la Leucemia onlus

  • Support for a project focused on integrated management of patients suffering from chronic haemopathies in hospital.
    € 15,000.00

Associazione Ligure Thalassemici ONLUS

  • Participation of two delegates at a Beta-Thalassaemia advisory board, including honoraria, transfers, accommodation and sustenance.
    € 915.92

Europa Donna – Italy

  • Support for activities in the Salute&Seno section on the D.Repubblica.it website.
    € 5,000.00

F.A.V.O. Federazione Italiana delle Associazioni di Volontariato in Oncologia

  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,178.16

Fondazione Federico Calabresi

  • Support to update the Multiple Mieloma guide for patients.
    € 2,000.00

Fondazione Nadia Valsecchi Onlus

  • Support for an awareness race focused on pancreatic cancer ‘corri per la ricerca terza edizione.
    € 3,000.00
  • Support for a World Pancreatic Cancer Day 2016 event.
    € 2,196.00

Fondazione Natalino Corazza Psoriasi & Co

  • Support for a national event titled: ‘Malattie cutanee: attualità e prospettive future’.
    € 2,500.00

Insieme contro il cancro

  • Support for a fundraising dinner.
    € 7,500.00

Lele Forever Onlus

  • Support for the project ‘Casa Lele e Lory’.
    € 10,000.00

Salute Donna – Associazione per la Prevenzione e lotta ai tumori femminili Onlus

  • Support for the organization of events involving patients, clinicians, citizens and political institutions to promote onco-hematology patients’ rights.
    € 20,000.00
  • Support for M.O.I.R.A. project focused on psycho-existential dimensions of oncology.
    € 5,000.00

UNIAMO Federazione Italiana Malattie Rare Onlus

  • Support for the implementation of the ‘www.malatirari.it’ rare disease website.
    € 10,000.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,481.48

WALCE Women against Lung cancer in Europe Onlus

  • Support for the national campaign ‘Esci dal tunnel non bruciarti il futuro’.
    € 5,000.00

You Able Onlus

  • Charitable donation for Milano Marathon.
    € 3,000.00

Lithuania

OHLB “Kraujas”

  • Sponsorship of 2017 projects, including “Day of Blood” event for patients and GPs, updating information on MDS, and preparing information about Kraujas and its activities in Lithuanian and English for publication on the organizations website.
    € 6,000.00

Macedonia

Macedonian Association for Fight Against Cancer “Borka”

  • Financial support for a campaign for gastrointestinal carcinomas and remarking World CRC Month.
    € 2,000.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,253.76

National Alliance for Rare Diseases of Macedonia (NARDM) LIFE WITH CHALLENGES Bitola

  • Financial support for the organization of Rare Disease Day 2017.
    € 3,000.00
  • Financial support for organizing the EUROPLAN Conference and Climbing Korab activity.
    € 2,000.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,235.76

Netherlands

Alvleesklier vereniging NL

  • Support for 2017 activities.
    € 2,500.00
  • Donation to support a patient event for the organization’s 20 year anniversary.
    € 2,500.00

Hematon

  • Consulting fees for input to Celgene clinical trial programme.
    € 400.00
  • Participation at CAR T advisory board, including honoraria, transportation, accommodation, and meals.
    € 1,647.65

Huidfonds

  • Support for projects aiming to improve information available to patients and to improving patients’ quality of life.
    € 5,000.00

Huidpatiënten Nederland

  • Support for a national patient event on skin diseases.
    € 5,000.00

Psoriasis Vereniging Nederland

  • Support for a national patient event for World Psoriasis Day.
    € 5,000.00

Reumazorg Nederland

  • Donation to support the organization of a national patient event.
    € 2,500.00

Norway

Blodkreftforeningen

  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 2,013.00
  • Sponsorship for patient and family leukemia day, MDS day and banner ad in magazine.
    € 11,110.00
  • Support for a disease conference.
    € 5,555.00
  • Sponsorship for an advertisement.
    € 5,555.00
  • Support for Blodkreftforeningen to run a patient seminar for patients to learn more about their disease.
    € 2,777.50
  • Support for Blodkreftforeningens 2017 activities.
    € 5,555.00

Poland

Carita Foundation – Living with Multiple Myeloma

  • Educational meeting for MM patients.
    € 8,948.00

Fundacja Pomocy Dzieciom i Osobom Chorym “Kawalek Nieba”

  • Support of rehabilitation project in rare diseases.
    € 2,237.00

National Forum for Rare Diseases ORPHAN

  • Support for a national campaign: “World Rare Disease Day and Rare Diseases Are Frequent and Important”.
    € 3,355.00
  • Poland for Rare Diseases Day.
    € 2,237.00
  • Support for the 3rd Europlan Conference – Poland for Rare Diseases.
    € 3,243.65

Polska Koalicja Pacjentów Onkologicznych/Polish Cancer Patients Coalition

  • Support for the 6th Cancer Patients Forum.
    € 2,237.00
  • Support for the Academy of Good Practices – communication networking forum for all cancer patients organization representatives.
    € 5,592.50

Polskie Stowarzyszenie Pomocy Chorym na Szpiczaka/Polish Association for MM Patients Aid

  • Support for the 12th Congress of Multiple Myeloma Patients Association.
    € 40,266.00
  • Support for an educational workshop for newly diagnosed patients and their carers.
    € 33,555.00
  • Support for a nationwide educational workshop for MM Patients.
    € 38,029.00
  • Administrative-office support for the Hematology Clinic of The Central Clinic Hospital.
    € 11,185

Stowarzyszenie Pomocy Chorym na Nowotwory Krwi w Zamościu

  • Support for 2 projects: Revitalization of the organizations website and a psychological support/infoline.
    € 1,767.23

Together in Disease Foundation – Fundacja Razem w Chorobie

  • Support for educational workshops for the leaders of patient organizations.
    € 12,303.50

Zachodniopomorskie Stowarzyszenie Chorych na Łuszczycę PSORIASIS

  • Support for 3 projects: Rebuilding of the website for PsA; Building the website for PSO; Educational meetings in Warsaw, Szczecin.
    € 8,948.00
  • Support for a nationwide social campaign on PsA.
    € 55,925.00

Hospice Foundation – Fundation Hospicyjna

  • Educational oncological conference support.
    € 6,000.00

Pracodawcy RP

  • Support of the Report on the access to innovative drugs in Poland.
    € 25,000.00

Portugal

Associação Nacional de Esclerose Múltipla

  • Funding for specific projects and activities in 2017.
    € 3,000.00

Associação Portuguesa Contra a Leucemia – APCL

  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,137.16

Associação Portuguesa de Fenilcetonúria e outras Doenças metabólicas

  • Sponsorship for Patient Association Conference on Pediatric Neurogenetics entitled “XLVI Conferências de Genética Doutor Jacinto Magalhães”.
    € 300.00

Associação Portuguesa de Leucemias e Linfomas (APLL)

  • Support for the patient association annual meeting and World Chronic Myeloid Leukemia Day activities in Portugal.
    € 1,000.00
  • Support for activities during Multiple Myeloma Month/Mês do Mieloma Múltiplo.
    € 2,000.00
  • Support for activities during Multiple Myeloma Month/Mês do Mieloma Múltiplo.
    € 1,191.00

Europacolon Portugal – Associação de Luta Contra o Cancro do Intestino

  • Support for pancreatic cancer initiatives.
    € 20,000.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,069.89
  • Support from ImpactPanc award program.
    € 18,692.00

Liga Portuguesa Contra as Doenças Reumáticas (LPCDR)

  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,165.73

Liga Portuguesa Contra o Cancro

  • Support for the campaigns “Tabaco vs YOU” and “Eating well is healthy”; Support for the cancer phone line – legal advice.
    € 5,000.00

Liga Portuguesa Contra o Cancro – Nucleo Regional do Centro

  • Sponsorship for Patient Association Congress entitled “Congresso Código Europeu Contra o Cancro”.
    € 1,500.00

TEM – TEM – Associação Todos com a Esclerose Múltipla

  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,069.89

Romania

Myeloma Euronet Romania

  • Attendance at Celgene ChangeMakers Summit, including transfers, accommodation and meals.
    € 789.90

Myeloproliferative Neoplasms Association(MIELOPRO)

  • Attendance at Celgene ChangeMakers Summit, including transfers, accommodation and meals.
    € 789.90

SOS Myeloma Romania

  • Attendance at Celgene ChangeMakers Summit, including transfers, accommodation and meals.
    € 789.90

Russian Federation

National Association of the organizations for patients with rare diseases “Genetics”

  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 789.90
  • Support for a press conference: “Access for Patients with Rare (Orphan) Diseases to Contemporary Treatment: Problems and Solutions” at International Multimedia Press Center of MIA “Russia Today”.
    € 3594.94
  • Support for the Interregional Program of Round Tables and Press Conferences: “Issues of improving the state policy on the treatment of patients with rare diseases with innovative modern drugs”.
    € 15,847.10

Russian Patients’ Association

  • Support for the VIII All-Russian Congress of Patient in Moscow, November 29 – December 1, 2017.
    € 8,803.93

Serbia

National Organization for Rare Diseases Serbia

  • Support for Rare Disease Day 2017.
    € 2,000.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,092.00

The Association of Myeloma Patients of Serbia

  • Financial support to cover the printing costs of the annual Serbian Myeloma Group educational materials.
    € 1,000.00
  • Financial support for the organization of a campaign for gastrointestinal carcinomas and remarking World CRC Month.
    € 3,000.00

Slovakia

Association of Patients with Haematological Malignancies

  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,297.00

Europacolon Slovensko

  • Organization of an educational seminar for patients and volunteers with focus on pancreatic cancer.
    € 2,000.00
  • Support for Europacolon Slovakia 2017 activities, including a pancreatic cancer awareness campaign, psychosocial support and advice, legal support, members meetings and seminars.
    € 15,000.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,297.00

OZ Slovenský pacient

  • Support for the publication of 20 dermatology-focused articles on the website www.slovenskypacient.sk.
    € 5,000.00

PRO GASTRO OPTIMUM OZ

  • Support for the information and education portal www.crohnika.sk for patients with intestinal and inflammatory diseases.
    € 2,000.00

Slovak Myeloma Society (SMyS)

  • Attendance at Celgene ChangeMakers Summit for 2 representatives, including transportation, accommodation and meals.
    € 2,434.00
  • Support of national educational seminar for multiple myeloma patients.
    € 4,000.00
  • Support for the “Patient Adherence Program in Multiple Myeloma – DIALOGUE”.
    € 7,000.00

Spoločnosť psoriatikov a atopikov SR

  • Support for the event “Hug day” in June 2017.
    € 15,000.00
  • Support for expenses connected with events for World Psoriasis Day and “Skin Day, Touch day 2018”.
    € 15,420.00

Združenie pacientov s hematologickými malignitami

  • Support for project to raise awareness of hematological malignancies and treatment options, providing legal and medical guidance and improving treatment adherence.
    € 16,000.00

Zdruzenie Sclerosis Multiplex Nadej

  • Support for the actualization of the web page http://sclerosis-multiplex.sk/.
    € 2,000.00

Slovenia

Association of patients with blood diseases

  • Co-financing participation costs at EBMT 2017 and co-financing the costs of issuing a booklet entitled Rare Diseases – Seventh Edition.
    € 6,000.00
  • Support for a new guide for patients, a prevention programme and a psychological help and support programme.
    € 3,000.00

Društvo revmatikov Slovenije

  • Financial support for the edition of newsletter for patients.
    € 1,500.00
  • Financial support for the organization of educational weekend seminars in 2017.
    € 1,500.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,181.50

Slovenian Association of Lymphoma and Leukaemia Patients

  • Financial support for the campaign “You are not alone”.
    € 4,000.00
  • Support for a guide for patients with disseminated plasmacytoma and a guide for patients with MDS.
    € 4,000.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,181.50

Slovenian Psoriasis Patient Association

  • Financial support for the project titled “Psoriasis and me – we always come together”.
    € 3,500.00
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 1,181.50

Spain

Sweden

Blodcancerförbundet

  • Support for an annual meeting, including lunch and speakers.
    € 950.46
  • Sponsorship of patient and family day on hematology treatments.
    € 2,802.94
  • Sponsorship of educational session for members on public affairs.
    € 2639.83
  • Sponsorship of political roundtable to discuss hematological cancers in Stockholm.
    € 1,553.44
  • Support for a roundtable meeting in western Sweden.
    € 733.28
  • Support for World Lymphoma Awareness Day.
    € 3,078.78

Cancerföreningen PALEMA

  • Support for World Pancreatic Cancer Day.
    € 5,110.00

Nätverket mot cancer

  • Sponsorship for World Cancer Day 2017.
    € 3,066.00

Reumatikerförbundet

  • Speaker for disease awareness for lecture on PsA.
    € 1,103.76

Switzerland

Europa Donna Switzerland

  • Financial support for workshops & seminars for cancer patients.
    € 5,551.80

ho/noho – Schweizerische Patientenorganisation für Lymphombetroffene und Angehörige

  • Financial support for World Lymphoma Awareness Day.
    € 4,626.50
  • Financial support for patients’ newsletter.
    € 3,007.23
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 730.99
  • financial support for lymphoma public website.
    € 2,868.43

Krebsliga Kanton Zürich

  • Support for workshops and seminars.
    € 4,626.50

MKgS – Myelom Kontaktgruppe Schweiz

  • Attendance at Celgene ChangeMakers Summit for 2 representatives, including transportation, accommodation and meals.
    € 1,245.45
  • Support for an MM awareness movie project.
    € 27,759.00
  • Financial support of patients’ symposia.
    € 7,402.40
  • Financial support for a patient survey.
    € 11,103.60

My Survival Story

  • Support for 2017 activities.
    € 4,626.50

Rheumaliga Schweiz

  • Financial support for the communication channels of Rheumaliga Schweiz.
    € 9,253.00

Schweizerische Psoriasis & Vitiligo Gesellschaft SPVG

  • Financial support for the communication channels of SPVG.
    € 8,327.70
  • Financial support disease awareness campaigns of SPVG.
    € 41,709.74

SKS – Stiftung zur Förderung der Knochenmarkstransplantation Schweiz

  • Financial support for a children’s Christmas event.
    € 5,551.80
  • Financial support for 9 regional patient groups.
    € 9,253.00
  • Financial support for a Patient Survey.
    € 11,103.60
  • Financial support for an MM brochure for patients.
    € 14,804.80
  • Attendance at Celgene ChangeMakers Summit, including transportation, accommodation and meals.
    € 661.59

Turkey

Lösemi Lenfoma Miyeloma Hastaları ve Araştırma Eğitim Birliği Derneği

  • Support for Patient Education Program (MM Awareness Day).
    € 4,045.50

Ege Hematoloji Onkoloji Derneği

  • Support for Patient Education Program (MM Awareness Day)
    € 2157.60

Pamukkale Hematoloji Derneği

  • Support for Patient Education Program (MM Awareness Day)
    € 2022.75

Erciyes Univ Tıp Eğitim ve Araştırma Hizmetleri Derneği

  • Support for Patient Education Program (MM Awareness Day)
    € 6742.50

United Kingdom